BibTex RIS Cite

Engelli Bireylerin Sağlık Hizmetlerine Erişimi ve Engelleri

Year 2019, Volume: 1 Issue: 1, 43 - 53, 01.01.2019

Özlem Karatana Kamer Gür

Abstract

Sağlık doğuştan kazanılmış temel insan hakkıdır. 1948 yılında İnsan Hakları Evrensel Bildirgesi’nde ‘tıbbi bakım alma hakkı yaş, cinsiyet, ekonomi gibi durumlara bağlı olmaksızın sağlık hizmetinden yararlanma olarak tanımlanmıştır. Engelli bireylerin herhangi bir nedene bağlı olmadan sağlık hizmetlerinden yararlanması gerekmektedir. Birleşmiş Milletler Engelli Hakları Sözleşmesi’nde de bu konuya yer verilerek tanımlanmış bir hak olduğu belirtilmiştir. Yapılan çalışmalar, engelli bireylerin sağlık hizmetlerine erişiminde yetersizlik olduğunu göstermiştir. Sağlık hizmetlerine erişimin önündeki engeller arasında; hastanelerin mimari tasarımı, tıbbi ekipman ile ilgili fiziksel engeller, sağlık hizmeti sunanların yeterli bilgi ve becerisinin olmaması, engelli kişilerin sağlığı geliştirme ve hastalık önleme hizmetlerini veya programlarını yanlış anlamaları, engelli kişilere karşı olumsuz tutum ve davranış, iletişim zorlukları ve engelli insanlar için sağlık hizmetlerine erişim hakkında yetersiz bilgi sayılabilir. Yapılan araştırmalarda engellilerin en çok sağlık personelinin tutumundan rahatsız oldukları bildirilmiştir. Sağlık hizmetlerine erişim bir halk sağlığı sorunu olsa da engelli bir kişinin sağlık hizmetine erişememesi sağlığını önemli derecede etkilemektedir. Sağlık hizmeti profesyonelleri ve bunlardan biri olan halk sağlığı hemşiresi engelli bireylerin sağlık ihtiyaçlarının karşılanmasında, sağlıklarını korumada ve sürdürmede lider konumdadır. Bu makalenin amacı engelli bireylerin sağlık hizmetlerine erişimi ve engellerini ortaya koymaktır. Ayrıca bu derleme ile engelli sağlığı ile ilgilenen profesyonellerin ve halk sağlığı hemşiresinin özel gruplara hizmet verirken ışık tutacağı düşünülmektedir.

Keywords

Engelli Sağlık Hizmeti Erişim Halk Sağlığı Hemşireliği

References

  • Auberry, K. (2018). ‘Intellectual and developmental disability nursing: current challenges in the USA’. Nursing: Research and Rewiews. 8, 23-28. https://www.dovepress.com/terms.php
  • Beatty, PW., Dhont, KR. (2001). ‘Medicare health maintenance organizations and traditional coverage: perceptions of health care among beneficiaries with disabilities’. Arch Phys Med Rehabil., 82 (8), 1009-1017. https://www.archives-pmr.org/article/S0003-9993(01)64880- 9/fulltext
  • Bershadsky, J., Hiersteiner, D., Fay, ML., & Bradley, V. (2014). ‘Race/ethnicity and the use of preventive health care among adults with intellectual and developmental disabilities’. Medical Care, 52(10 Suppl 3), 25-31. https://www.ncbi.nlm.nih.gov/pubmed/25215916
  • Butler, M., McCreedy, E., Schwer, N., Burgess, D., Call, K., Przedworski, J., ... Kane, R. L. (2016). Improving cultural competence to reduce health disparities. Comparative effectiveness review no. 170. (Prepared by the Minnesota Evidence-based Practice Center under Contract No. 290-2012-00016-I.) AHRQ publication no. 16- EHC006-EF. Agency for Healthcare Research and Quality: Rockville, MD. https://www.ncbi.nlm.nih.gov/books/NBK361126/.
  • Centers for Disease Control and Prevention. (2001). Prevalence of disabilities and associated health conditions among adults—United States, 1999. Journal of the American Medical Association, 285(12), 1571–1572. https://www.ncbi.nlm.nih.gov/pubmed/11302137
  • Drum, CE., McClain, MR., Horner-Johnson, W., Taitano, G. Health Disparities Chart Book on Disability and Racial and Ethnic Status in the United States. Institute on Disability, University of New Hampshire; 2011. https://iod.unh.edu/projects/health-disparitiesproject/health-disparities-chart-book Dünya Engellilik Raporu, 2011.
  • siteresources.worldbank.org/TURKEYINTURKISHEXTN/.../YoneticiOzeti.pdf Frost, KL., Bertocci, G., Stillman, M., Smalley, C., & Williams, S. (2015). ‘Accessibility of outpatient health care for wheelchair users: a pilot study’. J Rehabil Res Dev., 52(6), 653- 662. https://www.ncbi.nlm.nih.gov/pubmed/26560684
  • Greenwood, NW., Dreyfus, D., & Wilkinson, J. (2014). ‘More than just a mammogram: Breast cancer screening perspective of relatives of women with intellectual disability’. Intellectual & Developmental Disabilities, 52(6), 444-455.
  • https://www.ncbi.nlm.nih.gov/pubmed/25409131
  • Hoang, L., LaHousse, SF., Nakaji, MC., & Sadler, GR. (2011). ‘Assessing deaf cultural competency of physicians and medical students’. Journal of Cancer Education: The Official Journal of the American Association for Cancer Education, 26(1), 175–182. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3041910/
  • Jeon, B., Kwon, S., & Kim, H. (2015). ‘Health care utilization by people with disabilities: A longitudinal analysis of the Korea Welfare Panel Study (KoWePS)’. Disability and Health Journal, 8(3), 353- 362. https://www.ncbi.nlm.nih.gov/pubmed/25812476
  • Krahn, GL., Walker, DK., & Correa-De-Araujo, R. (2015). ‘Persons with disabilities as unrecognized health disparity population’. American Journal of Public Health (AJPH), 105
  • 198-206. https://ajph.aphapublications.org/doi/pdf/10.2105/AJPH.2014.302182 Kuenburg, A., Fellinger, P., & Fellinger, J. (2016). ‘Health care Access among deaf people’. Journal of Deaf Studies and Deaf Education,21(1), 1-10. https://www.ncbi.nlm.nih.gov/pubmed/26405210
  • Lezzoni, LI., Frakt, AB. & Pizer, SD. (2011). ‘Uninsured persons with disability confront substantial barriers to health care services’. 4(4), 238-44. https://www.ncbi.nlm.nih.gov/pubmed/22014671
  • Mastebroek, M., Naaldenberg, J., Lagro-Janssen, A. L. & van Schrojenstein Lantman de Valk H. (2014). ‘Health information exchange in general practice care for people with intellectual disabilities – a qualitative review of the literature’. Research in Developmental Disabilities 35(9), 1978–1987. https://www.ncbi.nlm.nih.gov/pubmed/24864050
  • McClintock, HFV., Barg, FK., Katz, SP., Stineman, MG., Krueger, A., Colletti, PM., Boellstorff, T., & Bogner, HR. (2016). ‘Health care experiences and perceptions among people with and without disabilities’. Disability and Health Journal, 981), 74- 82.
  • https://www.ncbi.nlm.nih.gov/pubmed/26482010 McColl, MA. (2005). ‘Disability studies at the population level: issues of health service utilization’. Am J Occup Ther., 59, 516-526. https://ci.nii.ac.jp/naid/10024833336/
  • Moore, G. (1997). ‘Improving health access: it’s about attitude’. Nursing BC., 29(3), 27-30. https://www.ncbi.nlm.nih.gov/pubmed/9305102
  • Pollard, R. Q., Dean, R. K., O’Hearn, A., & Haynes, S. L. (2009). ‘Adapting health education material for deaf audiences’. Rehabilitation Psychology, 54(2), 232–238. https://www.ncbi.nlm.nih.gov/pubmed/19469615
  • Sandel, M. E., Appelman, J., Kotch, M.J., Mundt, G.B., Lal, N., Samuels S., & Crespo, Y. (2010). ‘The California Kaiser Permanente Health System: Evolving to meet the needs of people with disabilities’. Disability and Health Journal, 3(4), 240- 244. https://www.ncbi.nlm.nih.gov/pubmed/21122792
  • Seccombe, J.A. (2007). ‘Attitudes towards disability in an undergraduate nursing curriculum: a literature review’. Nurse Educ. Today 27 (5), 459–465. https://www.ncbi.nlm.nih.gov/pubmed/17030492
  • Smith, DL., (2008). ‘Disparities in health care access for women with disabilities in the United States from the 2006 National Health Interview Survey’. Disability and Health Journal, 1(2), 79-88. https://www.ncbi.nlm.nih.gov/pubmed/21122715
  • Stillman, MD., Bertocci, G., Smalley, C., Williams, S., & Frost, KL. (2017). ‘Healthcare utilization and associated barriers experienced by wheelchair users: A pilot study’. Disability and Health Journal, 10(4), 502- 508. https://www.ncbi.nlm.nih.gov/pubmed/28245968
  • Story, MF., Schwier, E., & Kailes, J. I. (2009). ‘Perspectives of patients with disabilities on the accessibility of medical equipment: examination tables, imaging equipment, medical chairs, and weight scales’. Disability and Health Journal, 2(4), 169- 179.
  • https://www.ncbi.nlm.nih.gov/pubmed/21122757
  • TheADA-20Years Later- Survey of Americans with Disability.
  • http://www.2010disabilitysurvey.org/pdfs/HTpresentation.pdf
  • Ten Klooster, P.M., Dannenber, G.J.-W., Taal, E., Burge, G., Rasker, J.J. (2009). ‘Attitudes towards people with physical or intellectual disabilities: nursing students and non-nursing peers’. J. Adv. Nurs. 65 (12), 2562–2573. https://www.ncbi.nlm.nih.gov/pubmed/19941543
  • Terzi, H.& Alkaya, S.A. (2017), ‘Hassas Gruplarda Halk Sağlığı Hemşiresinin Rol ve Sorumlulukları’. Türkiye Klinikleri J. Public Health Nurs. Special Topics, 3 (3), 117-24
  • Tyler, CV., Schramm, S., Karafa, M., Tang, AS., & Jain, A. (2010). ‘Electronic health record analysis of the primary care of adults with intellectual and other developmental disabilities’. Journal of Policy and Practice in Intellectual Disabilities, 7(3), 204-210. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4477960/ https://www.globalgoals.org/
  • Todd, A., & Stuifbergen, A. (2012). ‘Breast cancer screening barriers and disability.’ Rehabilitation Nursing, 37 (2): 74–9. https://www.ncbi.nlm.nih.gov/pubmed/22434617

Health-Care Access and Barriers to Health Services Among Disabled Individuals

Year 2019, Volume: 1 Issue: 1, 43 - 53, 01.01.2019

Özlem Karatana Kamer Gür

Abstract

Health is a basic human right acquired from birth. In 1948, in the Universal Declaration of Human Rights, the right to receive medical care was defined as access to health care, regardless of age, sex or economy. Disabled individuals need to benefit from health services without any reason. Convention on the Rights of Persons with Disabilities also states that this is a defined right. Studies have shown that people with disabilities have inadequate access to health services. Barriers to access to health services include; the architectural design of hospitals, the physical barriers to medical equipment, the lack of adequate knowledge and skills of health service providers, the misunderstanding of health promotion and disease prevention services or programs for people with disabilities, negative attitudes and behaviors towards people with disabilities, communication difficulties and access to health services for people with disabilities and inadequate information about. In the studies conducted, it was reported that disabled people were mostly disturbed by the attitude of health personnel. Although access to health services is a public health problem, the fact that a person with a disability cannot access health services affects their health significantly. Health care professionals and the public health nurse, as the as the inevitable member among themm, are the leaders in meeting the health needs of disabled individuals and in prevention and promotion their health. The aim of this article is to provide imformation on health-care access and barriers to health services among disabled individuals. In addition, this review aims to shed light on the health of professionals and public health nurses who are interested in disability health.

Keywords

Disability Health Care Access Public Health Nursing

References

  • Auberry, K. (2018). ‘Intellectual and developmental disability nursing: current challenges in the USA’. Nursing: Research and Rewiews. 8, 23-28. https://www.dovepress.com/terms.php
  • Beatty, PW., Dhont, KR. (2001). ‘Medicare health maintenance organizations and traditional coverage: perceptions of health care among beneficiaries with disabilities’. Arch Phys Med Rehabil., 82 (8), 1009-1017. https://www.archives-pmr.org/article/S0003-9993(01)64880- 9/fulltext
  • Bershadsky, J., Hiersteiner, D., Fay, ML., & Bradley, V. (2014). ‘Race/ethnicity and the use of preventive health care among adults with intellectual and developmental disabilities’. Medical Care, 52(10 Suppl 3), 25-31. https://www.ncbi.nlm.nih.gov/pubmed/25215916
  • Butler, M., McCreedy, E., Schwer, N., Burgess, D., Call, K., Przedworski, J., ... Kane, R. L. (2016). Improving cultural competence to reduce health disparities. Comparative effectiveness review no. 170. (Prepared by the Minnesota Evidence-based Practice Center under Contract No. 290-2012-00016-I.) AHRQ publication no. 16- EHC006-EF. Agency for Healthcare Research and Quality: Rockville, MD. https://www.ncbi.nlm.nih.gov/books/NBK361126/.
  • Centers for Disease Control and Prevention. (2001). Prevalence of disabilities and associated health conditions among adults—United States, 1999. Journal of the American Medical Association, 285(12), 1571–1572. https://www.ncbi.nlm.nih.gov/pubmed/11302137
  • Drum, CE., McClain, MR., Horner-Johnson, W., Taitano, G. Health Disparities Chart Book on Disability and Racial and Ethnic Status in the United States. Institute on Disability, University of New Hampshire; 2011. https://iod.unh.edu/projects/health-disparitiesproject/health-disparities-chart-book Dünya Engellilik Raporu, 2011.
  • siteresources.worldbank.org/TURKEYINTURKISHEXTN/.../YoneticiOzeti.pdf Frost, KL., Bertocci, G., Stillman, M., Smalley, C., & Williams, S. (2015). ‘Accessibility of outpatient health care for wheelchair users: a pilot study’. J Rehabil Res Dev., 52(6), 653- 662. https://www.ncbi.nlm.nih.gov/pubmed/26560684
  • Greenwood, NW., Dreyfus, D., & Wilkinson, J. (2014). ‘More than just a mammogram: Breast cancer screening perspective of relatives of women with intellectual disability’. Intellectual & Developmental Disabilities, 52(6), 444-455.
  • https://www.ncbi.nlm.nih.gov/pubmed/25409131
  • Hoang, L., LaHousse, SF., Nakaji, MC., & Sadler, GR. (2011). ‘Assessing deaf cultural competency of physicians and medical students’. Journal of Cancer Education: The Official Journal of the American Association for Cancer Education, 26(1), 175–182. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3041910/
  • Jeon, B., Kwon, S., & Kim, H. (2015). ‘Health care utilization by people with disabilities: A longitudinal analysis of the Korea Welfare Panel Study (KoWePS)’. Disability and Health Journal, 8(3), 353- 362. https://www.ncbi.nlm.nih.gov/pubmed/25812476
  • Krahn, GL., Walker, DK., & Correa-De-Araujo, R. (2015). ‘Persons with disabilities as unrecognized health disparity population’. American Journal of Public Health (AJPH), 105
  • 198-206. https://ajph.aphapublications.org/doi/pdf/10.2105/AJPH.2014.302182 Kuenburg, A., Fellinger, P., & Fellinger, J. (2016). ‘Health care Access among deaf people’. Journal of Deaf Studies and Deaf Education,21(1), 1-10. https://www.ncbi.nlm.nih.gov/pubmed/26405210
  • Lezzoni, LI., Frakt, AB. & Pizer, SD. (2011). ‘Uninsured persons with disability confront substantial barriers to health care services’. 4(4), 238-44. https://www.ncbi.nlm.nih.gov/pubmed/22014671
  • Mastebroek, M., Naaldenberg, J., Lagro-Janssen, A. L. & van Schrojenstein Lantman de Valk H. (2014). ‘Health information exchange in general practice care for people with intellectual disabilities – a qualitative review of the literature’. Research in Developmental Disabilities 35(9), 1978–1987. https://www.ncbi.nlm.nih.gov/pubmed/24864050
  • McClintock, HFV., Barg, FK., Katz, SP., Stineman, MG., Krueger, A., Colletti, PM., Boellstorff, T., & Bogner, HR. (2016). ‘Health care experiences and perceptions among people with and without disabilities’. Disability and Health Journal, 981), 74- 82.
  • https://www.ncbi.nlm.nih.gov/pubmed/26482010 McColl, MA. (2005). ‘Disability studies at the population level: issues of health service utilization’. Am J Occup Ther., 59, 516-526. https://ci.nii.ac.jp/naid/10024833336/
  • Moore, G. (1997). ‘Improving health access: it’s about attitude’. Nursing BC., 29(3), 27-30. https://www.ncbi.nlm.nih.gov/pubmed/9305102
  • Pollard, R. Q., Dean, R. K., O’Hearn, A., & Haynes, S. L. (2009). ‘Adapting health education material for deaf audiences’. Rehabilitation Psychology, 54(2), 232–238. https://www.ncbi.nlm.nih.gov/pubmed/19469615
  • Sandel, M. E., Appelman, J., Kotch, M.J., Mundt, G.B., Lal, N., Samuels S., & Crespo, Y. (2010). ‘The California Kaiser Permanente Health System: Evolving to meet the needs of people with disabilities’. Disability and Health Journal, 3(4), 240- 244. https://www.ncbi.nlm.nih.gov/pubmed/21122792
  • Seccombe, J.A. (2007). ‘Attitudes towards disability in an undergraduate nursing curriculum: a literature review’. Nurse Educ. Today 27 (5), 459–465. https://www.ncbi.nlm.nih.gov/pubmed/17030492
  • Smith, DL., (2008). ‘Disparities in health care access for women with disabilities in the United States from the 2006 National Health Interview Survey’. Disability and Health Journal, 1(2), 79-88. https://www.ncbi.nlm.nih.gov/pubmed/21122715
  • Stillman, MD., Bertocci, G., Smalley, C., Williams, S., & Frost, KL. (2017). ‘Healthcare utilization and associated barriers experienced by wheelchair users: A pilot study’. Disability and Health Journal, 10(4), 502- 508. https://www.ncbi.nlm.nih.gov/pubmed/28245968
  • Story, MF., Schwier, E., & Kailes, J. I. (2009). ‘Perspectives of patients with disabilities on the accessibility of medical equipment: examination tables, imaging equipment, medical chairs, and weight scales’. Disability and Health Journal, 2(4), 169- 179.
  • https://www.ncbi.nlm.nih.gov/pubmed/21122757
  • TheADA-20Years Later- Survey of Americans with Disability.
  • http://www.2010disabilitysurvey.org/pdfs/HTpresentation.pdf
  • Ten Klooster, P.M., Dannenber, G.J.-W., Taal, E., Burge, G., Rasker, J.J. (2009). ‘Attitudes towards people with physical or intellectual disabilities: nursing students and non-nursing peers’. J. Adv. Nurs. 65 (12), 2562–2573. https://www.ncbi.nlm.nih.gov/pubmed/19941543
  • Terzi, H.& Alkaya, S.A. (2017), ‘Hassas Gruplarda Halk Sağlığı Hemşiresinin Rol ve Sorumlulukları’. Türkiye Klinikleri J. Public Health Nurs. Special Topics, 3 (3), 117-24
  • Tyler, CV., Schramm, S., Karafa, M., Tang, AS., & Jain, A. (2010). ‘Electronic health record analysis of the primary care of adults with intellectual and other developmental disabilities’. Journal of Policy and Practice in Intellectual Disabilities, 7(3), 204-210. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4477960/ https://www.globalgoals.org/
  • Todd, A., & Stuifbergen, A. (2012). ‘Breast cancer screening barriers and disability.’ Rehabilitation Nursing, 37 (2): 74–9. https://www.ncbi.nlm.nih.gov/pubmed/22434617
There are 31 citations in total.

Details

Primary Language Turkish
Journal Section Collection
Authors

Özlem Karatana This is me

Kamer Gür

Publication Date January 1, 2019
Published in Issue Year 2019 Volume: 1 Issue: 1

Cite

APA Karatana, Ö., & Gür, K. (2019). Engelli Bireylerin Sağlık Hizmetlerine Erişimi ve Engelleri. Halk Sağlığı Hemşireliği Dergisi, 1(1), 43-53.