Derleme
BibTex RIS Kaynak Göster

Yenidoğan Hemşireliğinde Palyatif Bakım ve Spiritüalite: Literatür Taraması

Yıl 2023, Cilt: 25 Sayı: 3, 56 - 75, 24.12.2023

Rukiye Çelik Ebru Kılıçarslan Törüner

Öz

Giriş: Yenidoğan yoğun bakım üniteleri ağırlıklı olarak hayat kurtarmaya odaklansa da, yenidoğanlara ve ailelere palyatif ve spiritüel bakım yapılmasını önermektedir.
Amaç: Yenidoğan hemşireliği alanında yenidoğan ve ailelerine palyatif ve spiritüel bakım ve bu sürecin etkin yönetimine yönelik bir bakış açısı oluşturmaktır.
Yöntemler: Bu bir literatür taramasıdır.
Bulgular: Palyatif bakım, yaşam, ölüm ve bakım sonrası kapsamlı bir yaklaşımı içerir. Palyatif bakım, ağrı yönetimi, semptom yönetimi, psikososyal ve spiritüel bakımı içerir. Hastaların ve ebeveynlerin spiritüel bakımı, onların esenliği ile önemli ölçüde ilişkilidir.
Sonuç: Hemşireler yönetici, bakım veren, işbirlikçi, lider, eğitimci, araştırmacı ve savunucu rollerini kullanarak palyatif ve spiritüel bakımı planlayabilir ve uygulayabilir. Hemşireler tarafından sunulan palyatif ve spiritüel bakım, sağlık sonuçlarını iyileştirecek, ebeveynlerin daha sağlıklı bir kayıp ve yas dönemi geçirmelerini sağlayacak ve bütüncül, bireyselleştirilmiş, aile merkezli bakımı destekleyecektir.

Anahtar Kelimeler

palyatif bakım spiritüalite yenidoğan hemşire ebeveynler

Kaynakça

  • AAP, (2000). Committee on Bioethics. Palliative care for children. Pediatrics, 106(2), 351-357.
  • Alharbi, M. K. N., & Baker, D. O. G. (2020). Jean Watson’s Middle Range Theory of Human Caring: A Critique. International Journal of Advanced Multidisciplinary Scientific Research (IJAMSR), 3(1), 1-14.
  • Almeida, F. D. A., Moraes, M. S. D., & Cunha, M. L. D. R. (2016). Taking care of the newborn dying and their families: Nurses' experiences of neonatal intensive care. Revista da Escola de Enfermagem da USP, 50(SPE), 122-129.
  • American Holistic Nurses Association. (2013). Holistic nursing: Scopes and standards of practice (2nd ed.). American Holistic Nurses Association & American Nurses Association.
  • Anspacher, M., Burd, A., Stroh, J., & Conroy, R. (2017). Newborn Care Curriculum: Palliative Care for the Newborn. MedEdPORTAL: the journal of teaching and learning resources, 13.
  • Beckstrand, R. L., Isaacson, R. F., Macintosh, J. L., Luthy, K. E., & Eden, L. (2019). NICU nurses' suggestions for improving end-of-life care obstacles. Journal of Neonatal Nursing, 25(1), 32-36.
  • Black, R., Kerr-Elliott, T., Judge-Kronis, L., & Sebire, N. (2020). Care after Death: For the Baby and their Family, including Post Mortem Examination. In Neonatal Palliative Care for Nurses, 299-322.
  • Bloomer, M. J., O’Connor, M., Copnell, B., & Endacott, R. (2015). Nursing care for the families of the dying child/infant in paediatric and neonatal ICU: nurses’ emotional talk and sources of discomfort. A mixed methods study. Australian Critical Care, 28(2), 87-92.
  • Butcher, H. K., Bulechek, G. M., Dochterman, J. M. M., & Wagner, C. M. (2018). Nursing Interventions classification (NIC)-E-Book. Elsevier Health Sciences, 352-354.
  • Catlin, A., Brandon, D., Wool, C., & Mendes, J. (2015). Palliative and end-of-life care for newborns and infants: from the National Association of Neonatal Nurses. Advances in Neonatal Care, 15(4), 239-240.
  • Center for Spirituality, Theology and Health, (2023). https://spiritualityandhealth.duke.edu/. Erişim: 12.12.2023. Cimete, G. (2018). Dünyada ve Ülkemizde Palyatif Bakım Uygulamaları. Türkiye Klinikleri Çocuk Sağlığı ve Hastalıkları Hemşireliği-Özel Konular, 4(3), 1-6.
  • Currie, E. R., Christian, B. J., Hinds, P. S., et al. (2016). Parent perspectives of neonatal intensive care at the end-of-life. J Pediatr Nurs, 31, 478–489.
  • Çınar, F., & Eti Aslan, F. (2017). Spiritüalizm ve hemşirelik: yoğun bakım hastalarında spiritüel bakımın önemi. JAREN: Journal of Academic Research in Nursing, 3(1), 37-42.
  • Dalcalı, B. K. (2019). Palyatif Bakım Birimlerinde Manevi Bakım ve Hemşirelik. Sakarya Üniversitesi Holistik Sağlık Dergisi, 2(2), 29-37.
  • Edwards, A., Pang, N., Shiu, V., & Chan, C. (2010). The understanding of spirituality and the potential role of spiritual care in end-of-life and palliative care: a meta-study of qualitative research. Palliative Medicine, 24(8), 753-771.
  • Esenay, F. I. (2018). Yenidoğanda Palyatif Bakım. Turkiye Klinikleri Pediatric Nursing-Special Topics, 4(3), 7-13. Falck, A., Moorthy, S., & Hussey-Gardner, B. (2016). Perceptions of palliative care in the NICU. Adv Neonat Care, 16, 191–200.
  • Gijsberts, M. J. H., Liefbroer, A. I., Otten, R., & Olsman, E. (2019). Spiritual care in palliative care: a systematic review of the recent European literature. Medical Sciences, 7(2), 25.
  • Hasanpour, M., Sadeghi, N., & Heidarzadeh, M. (2016). A03-D The End-of-Life Spiritual Care Service Package in the Newborn Intensive Care Unit (s). Journal of Pain and Symptom Management, 52(6), 7-8.
  • Hemşirelik Yönetmeliği, (2011). Hemşirelik Yönetmeliğinde Değişiklik Yapılmasına Dair Yönetmelik. Resmi Gazete, (27910).
  • Hu, Y., Li, F., & Chiou, J. F. (2019). Psychometric properties of the Chinese mainland version of the Palliative Care Spiritual Care Competency Scale (PCSCCS-M) in nursing: a cross-sectional study. BMC palliative care, 18(1), 1-8.
  • Jackson, C., & Vasudevan, C. (2020). Palliative care in the neonatal intensive care unit. Paediatrics and Child Health, 30(4), 124-128.
  • Kabasakal, A., & Kitiş, Y. (2021). Watson’ın İnsan Bakım Modelinin Kavramsal Açıdan İncelenmesi. Sağlık Akademisi Kastamonu, 6(2), 45-50.
  • Kain, V., Gardner, G., & Yates, P. (2009). Neonatal palliative care attitude scale: development of an instrument to measure the barriers to and facilitators of palliative care in neonatal nursing. Pediatrics, 123(2):207-213.
  • Kenner, C. (2016). The role of neonatal nurses in palliative care. Newborn and Infant Nursing Reviews, 16(2), 74-77.
  • Kilicarslan Toruner, E., Altay, N., Ceylan, C., Arpaci, T., & Sari, C. (2020). Meaning and Affecting Factors of Spirituality in Adolescents. Journal of Holistic Nursing, 38(4), 362-372.
  • Kıvanç, M. M. (2017). Türkiye’de palyatif bakım hizmetleri. Sağlık Bilimleri ve Meslekleri Dergisi, 4(2), 132-135.
  • Korhan, E. A. (2019). Watson’un İnsan Bakım Modeli: Bir sistematik derleme. Sakarya Üniversitesi Holistik Sağlık Dergisi, 2(2), 46-68.
  • Kyc, S. J., Bruno, C. J., Shabanova, V., & Montgomery, A. M. (2020). Perceptions of Neonatal Palliative Care: Similarities and Differences between Medical and Nursing Staff in a Level IV Neonatal Intensive Care Unit. Journal of Palliative Medicine, 23(5), 662-669.
  • Mamier, I., Taylor, E. J., & Winslow, B. W. (2019). Nurse spiritual care: Prevalence and correlates. Western journal of nursing research, 41(4), 537-554.
  • Mancini, A., Price, J., & Kerr-Elliott, T. (2020). Neonatal palliative care for nurses. Springer International Publishing.
  • Marc-Aurele, K. L., & English, N. K. (2017). Primary palliative care in neonatal intensive care. In Seminars in perinatology, 41(2), 133-139.
  • Marçola, L., Barbosa, S. M. M., Zoboli, I., Polastrini, R. T. V., & Ceccon, M. E. J. (2017). Analysis of death and palliative care in a neonatal intensive care. Revista Paulista Pediatria, 35(2):125-129.
  • Marlow, N., & Gallagher, K. (2020). Introduction to Neonatal Palliative Care. In Neonatal Palliative Care for Nurses, Springer, Cham.
  • Özel, Ş., Tayman, C., Korkut, S., Çakar, E. S., & Üstün, Y. E. (2018). Yenidoğan Yoğun bakım Ünitelerinde Palyatif Bakımın Önemi ve Gerekliliği. Ahi Evran Tıp Dergisi, 2, 39-44.
  • Pajnkihar, M., McKenna, H.P., Štiglic, G., & Vrbnjak, D. (2017). Fit for practice: analysis and evaluation of Watson’s Theory of Human Caring. Nursing Science Quarterly, 30(3), 243-252.
  • Parravicini, E. (2017). Neonatal Palliative Care. Curr Opin in Pediatr,29(2), 136-140.
  • Paul Victor, C. G., Treschuk J. V. (2020). Critical literature review on the definition clarity of the concept of faith, religion, and spirituality. Journal of Holistic Nursing,38(1), 107-113.
  • Pearce, M. J., Coan, A. D., Herndon, J. E., Koenig, H. G., & Abernethy, A. P. (2012). Unmet spiritual care needs impact emotional and spiritual well-being in advanced cancer patients. Supportive Care in Cancer, 20(10), 2269-2276.
  • Petteys, A. R., Goebel, J. R., Wallace, J. D., & Singh-Carlson, S. (2015). Palliative care in neonatal intensive care, effects on parent stress and satisfaction: a feasibility study. American Journal of Hospice and Palliative Medicine, 32, 869–875.
  • Quinn, M., Weiss, A. B., & Crist, J. D. (2020). Early for Everyone: Reconceptualizing Palliative Care in the Neonatal Intensive Care Unit. Advances in Neonatal Care, 20(2), 109-117.
  • Rachel, H., Chiara, C., Robert, K., &Francesco, S. (2019). Spiritual care in nursing: an overview of the measures used to assess spiritual care provision and related factors amongst nurses. Acta Bio Medica: Atenei Parmensis, 90(Suppl 4), 44.
  • Selman, L. E., Brighton, L. J., Sinclair, S., Karvinen, I., Egan, R., Speck, P., . . . & Puchalski, C. (2018). Patients’ and caregivers’ needs, experiences, preferences and research priorities in spiritual care: A focus group study across nine countries. Palliative Medicine, 32, 216-230.
  • Silva, E. M. B., Silva, M. J. M., & Silva, D. M. (2019). Perception of health professionals about neonatal palliative care. Revista brasileira de enfermagem, 72(6), 1707-1714.
  • Steinhauser, K. E., Fitchett, G., Handzo, G. F., Johnson, K. S., Koenig, H. G., Pargament, K. I., ... & Balboni, T. A. (2017). State of the science of spirituality and palliative care research part I: Definitions, measurement, and outcomes. Journal of Pain and Symptom Management, 54(3), 428-440.
  • Şentürk, S. G., Küçükgüçlü, Ö., & Watson, J. (2017). Watson İnsan Bakım Teorisi’nin Perspektifinden: Demans Hastalığı Olan Bireye Bakımverenlerin Bakımı. Hacettepe Üniversitesi Hemşirelik Fakültesi Dergisi, 4(1), 62-72.
  • The British Association of Perinatal Medicine (2010). Palliative Care (Supportive and End of Life Care) A Framework for Clinical Practice in Perinatal Medicine. Report of the Working Group, August.
  • Ünal, S., & Zenciroğlu, A. (2016). Yenidoğanlarda Palyatif Bakım. Türkiye Çocuk Hastalıkları Dergisi, 10(2), 149-155.
  • Viallard, M. L., & Moriette, G. (2017). Palliative care for newborn infants with congenital malformations or genetic abnormalities. Archives de pediatrie: organe officiel de la Societe francaise de pediatrie, 24(2), 169-174.
  • Walker, H., & Waterworth, S. (2017). New Zealand palliative care nurses experiences of providing spiritual care to patients with life-limiting illness. International Journal of Palliative Nursing, 23(1), 18-26.
  • Watson, J., &Woodward, T. K. (2020). Jean Watson's Theory of human caring. SAGE Publications Limited.
  • WHO, (2014). Global Atlas of Palliative Care at the End of Life. chrome-extension://efaidnbmnnnibpcajpcglclefindmkaj/https://www.iccp-portal.org/system/files/resources/Global_Atlas_of_Palliative_Care.pdf, Erişim:12.09.2020.
  • WHO, (2020). Definition of palliative care. https://www.who.int/cancer/palliative/definition/en/, Erişim:20.09.2020.
  • WHO, (2020). Palliative Care. https://www.who.int/news-room/fact-sheets/detail/palliative-care, Erişim: 20.09.2020.
  • Zamani, P., Dehnad, A., Haghani, H., & Borimnejad, L. (2019). Effect of Web-Based Education on Knowledge, Attitude, and Practice of Nurses in Neonatal Intensive Care Unit. Interdisciplinary Journal of Virtual Learning in Medical Sciences, 10(1), 10-20.
  • Zamanzadeh, V., Jasemi, M., Valizadeh, L., Keogh, B., &Taleghani, F. (2015). Effective factors in providing holistic care: a qualitative study. Indian journal of palliative care, 21(2), 214-224.
  • Zuniga-Villanueva, G., Widger, K., Medeiros, C., Trenholm, M., & Streuli, J. C. (2021). Specialized Pediatric Palliative Care in Neonates with Life-Limiting Illness: A Systematic Review. American Journal of Perinatology, 38(S 01), e318-e329

Palliative Care and Spirituality in Neonatal Nursing: Literature Review

Yıl 2023, Cilt: 25 Sayı: 3, 56 - 75, 24.12.2023

Rukiye Çelik Ebru Kılıçarslan Törüner

Öz

Background: Although neonatal intensive care units mainly focus on saving lives, newborns and their families recommended providing palliative and spiritual care.
Aim: To create a perspective on palliative and spiritual care for the newborns and their families of neonatal nursing, and the effective management of this process.
Methods: This is a literature review.
Results: Palliative care includes a comprehensive approach to life, death, and aftercare. Palliative care include pain management, symptom management, psychosocial and spiritual care. Spiritual care of patients and parents is significantly related to their well-being.
Conclusion: Nurses can plan and implement palliative and spiritual care, using their roles of manager, caregiver, collaborator, leader, educator, researcher, and advocate. Palliative and spiritual care offered by nurses, will improve the health outcomes, ensure that the parents have a healthier period of loss and grief, and support holistic, individualized, family-centered care.

Anahtar Kelimeler

palliative care spirituality newborn nurse parents

Kaynakça

  • AAP, (2000). Committee on Bioethics. Palliative care for children. Pediatrics, 106(2), 351-357.
  • Alharbi, M. K. N., & Baker, D. O. G. (2020). Jean Watson’s Middle Range Theory of Human Caring: A Critique. International Journal of Advanced Multidisciplinary Scientific Research (IJAMSR), 3(1), 1-14.
  • Almeida, F. D. A., Moraes, M. S. D., & Cunha, M. L. D. R. (2016). Taking care of the newborn dying and their families: Nurses' experiences of neonatal intensive care. Revista da Escola de Enfermagem da USP, 50(SPE), 122-129.
  • American Holistic Nurses Association. (2013). Holistic nursing: Scopes and standards of practice (2nd ed.). American Holistic Nurses Association & American Nurses Association.
  • Anspacher, M., Burd, A., Stroh, J., & Conroy, R. (2017). Newborn Care Curriculum: Palliative Care for the Newborn. MedEdPORTAL: the journal of teaching and learning resources, 13.
  • Beckstrand, R. L., Isaacson, R. F., Macintosh, J. L., Luthy, K. E., & Eden, L. (2019). NICU nurses' suggestions for improving end-of-life care obstacles. Journal of Neonatal Nursing, 25(1), 32-36.
  • Black, R., Kerr-Elliott, T., Judge-Kronis, L., & Sebire, N. (2020). Care after Death: For the Baby and their Family, including Post Mortem Examination. In Neonatal Palliative Care for Nurses, 299-322.
  • Bloomer, M. J., O’Connor, M., Copnell, B., & Endacott, R. (2015). Nursing care for the families of the dying child/infant in paediatric and neonatal ICU: nurses’ emotional talk and sources of discomfort. A mixed methods study. Australian Critical Care, 28(2), 87-92.
  • Butcher, H. K., Bulechek, G. M., Dochterman, J. M. M., & Wagner, C. M. (2018). Nursing Interventions classification (NIC)-E-Book. Elsevier Health Sciences, 352-354.
  • Catlin, A., Brandon, D., Wool, C., & Mendes, J. (2015). Palliative and end-of-life care for newborns and infants: from the National Association of Neonatal Nurses. Advances in Neonatal Care, 15(4), 239-240.
  • Center for Spirituality, Theology and Health, (2023). https://spiritualityandhealth.duke.edu/. Erişim: 12.12.2023. Cimete, G. (2018). Dünyada ve Ülkemizde Palyatif Bakım Uygulamaları. Türkiye Klinikleri Çocuk Sağlığı ve Hastalıkları Hemşireliği-Özel Konular, 4(3), 1-6.
  • Currie, E. R., Christian, B. J., Hinds, P. S., et al. (2016). Parent perspectives of neonatal intensive care at the end-of-life. J Pediatr Nurs, 31, 478–489.
  • Çınar, F., & Eti Aslan, F. (2017). Spiritüalizm ve hemşirelik: yoğun bakım hastalarında spiritüel bakımın önemi. JAREN: Journal of Academic Research in Nursing, 3(1), 37-42.
  • Dalcalı, B. K. (2019). Palyatif Bakım Birimlerinde Manevi Bakım ve Hemşirelik. Sakarya Üniversitesi Holistik Sağlık Dergisi, 2(2), 29-37.
  • Edwards, A., Pang, N., Shiu, V., & Chan, C. (2010). The understanding of spirituality and the potential role of spiritual care in end-of-life and palliative care: a meta-study of qualitative research. Palliative Medicine, 24(8), 753-771.
  • Esenay, F. I. (2018). Yenidoğanda Palyatif Bakım. Turkiye Klinikleri Pediatric Nursing-Special Topics, 4(3), 7-13. Falck, A., Moorthy, S., & Hussey-Gardner, B. (2016). Perceptions of palliative care in the NICU. Adv Neonat Care, 16, 191–200.
  • Gijsberts, M. J. H., Liefbroer, A. I., Otten, R., & Olsman, E. (2019). Spiritual care in palliative care: a systematic review of the recent European literature. Medical Sciences, 7(2), 25.
  • Hasanpour, M., Sadeghi, N., & Heidarzadeh, M. (2016). A03-D The End-of-Life Spiritual Care Service Package in the Newborn Intensive Care Unit (s). Journal of Pain and Symptom Management, 52(6), 7-8.
  • Hemşirelik Yönetmeliği, (2011). Hemşirelik Yönetmeliğinde Değişiklik Yapılmasına Dair Yönetmelik. Resmi Gazete, (27910).
  • Hu, Y., Li, F., & Chiou, J. F. (2019). Psychometric properties of the Chinese mainland version of the Palliative Care Spiritual Care Competency Scale (PCSCCS-M) in nursing: a cross-sectional study. BMC palliative care, 18(1), 1-8.
  • Jackson, C., & Vasudevan, C. (2020). Palliative care in the neonatal intensive care unit. Paediatrics and Child Health, 30(4), 124-128.
  • Kabasakal, A., & Kitiş, Y. (2021). Watson’ın İnsan Bakım Modelinin Kavramsal Açıdan İncelenmesi. Sağlık Akademisi Kastamonu, 6(2), 45-50.
  • Kain, V., Gardner, G., & Yates, P. (2009). Neonatal palliative care attitude scale: development of an instrument to measure the barriers to and facilitators of palliative care in neonatal nursing. Pediatrics, 123(2):207-213.
  • Kenner, C. (2016). The role of neonatal nurses in palliative care. Newborn and Infant Nursing Reviews, 16(2), 74-77.
  • Kilicarslan Toruner, E., Altay, N., Ceylan, C., Arpaci, T., & Sari, C. (2020). Meaning and Affecting Factors of Spirituality in Adolescents. Journal of Holistic Nursing, 38(4), 362-372.
  • Kıvanç, M. M. (2017). Türkiye’de palyatif bakım hizmetleri. Sağlık Bilimleri ve Meslekleri Dergisi, 4(2), 132-135.
  • Korhan, E. A. (2019). Watson’un İnsan Bakım Modeli: Bir sistematik derleme. Sakarya Üniversitesi Holistik Sağlık Dergisi, 2(2), 46-68.
  • Kyc, S. J., Bruno, C. J., Shabanova, V., & Montgomery, A. M. (2020). Perceptions of Neonatal Palliative Care: Similarities and Differences between Medical and Nursing Staff in a Level IV Neonatal Intensive Care Unit. Journal of Palliative Medicine, 23(5), 662-669.
  • Mamier, I., Taylor, E. J., & Winslow, B. W. (2019). Nurse spiritual care: Prevalence and correlates. Western journal of nursing research, 41(4), 537-554.
  • Mancini, A., Price, J., & Kerr-Elliott, T. (2020). Neonatal palliative care for nurses. Springer International Publishing.
  • Marc-Aurele, K. L., & English, N. K. (2017). Primary palliative care in neonatal intensive care. In Seminars in perinatology, 41(2), 133-139.
  • Marçola, L., Barbosa, S. M. M., Zoboli, I., Polastrini, R. T. V., & Ceccon, M. E. J. (2017). Analysis of death and palliative care in a neonatal intensive care. Revista Paulista Pediatria, 35(2):125-129.
  • Marlow, N., & Gallagher, K. (2020). Introduction to Neonatal Palliative Care. In Neonatal Palliative Care for Nurses, Springer, Cham.
  • Özel, Ş., Tayman, C., Korkut, S., Çakar, E. S., & Üstün, Y. E. (2018). Yenidoğan Yoğun bakım Ünitelerinde Palyatif Bakımın Önemi ve Gerekliliği. Ahi Evran Tıp Dergisi, 2, 39-44.
  • Pajnkihar, M., McKenna, H.P., Štiglic, G., & Vrbnjak, D. (2017). Fit for practice: analysis and evaluation of Watson’s Theory of Human Caring. Nursing Science Quarterly, 30(3), 243-252.
  • Parravicini, E. (2017). Neonatal Palliative Care. Curr Opin in Pediatr,29(2), 136-140.
  • Paul Victor, C. G., Treschuk J. V. (2020). Critical literature review on the definition clarity of the concept of faith, religion, and spirituality. Journal of Holistic Nursing,38(1), 107-113.
  • Pearce, M. J., Coan, A. D., Herndon, J. E., Koenig, H. G., & Abernethy, A. P. (2012). Unmet spiritual care needs impact emotional and spiritual well-being in advanced cancer patients. Supportive Care in Cancer, 20(10), 2269-2276.
  • Petteys, A. R., Goebel, J. R., Wallace, J. D., & Singh-Carlson, S. (2015). Palliative care in neonatal intensive care, effects on parent stress and satisfaction: a feasibility study. American Journal of Hospice and Palliative Medicine, 32, 869–875.
  • Quinn, M., Weiss, A. B., & Crist, J. D. (2020). Early for Everyone: Reconceptualizing Palliative Care in the Neonatal Intensive Care Unit. Advances in Neonatal Care, 20(2), 109-117.
  • Rachel, H., Chiara, C., Robert, K., &Francesco, S. (2019). Spiritual care in nursing: an overview of the measures used to assess spiritual care provision and related factors amongst nurses. Acta Bio Medica: Atenei Parmensis, 90(Suppl 4), 44.
  • Selman, L. E., Brighton, L. J., Sinclair, S., Karvinen, I., Egan, R., Speck, P., . . . & Puchalski, C. (2018). Patients’ and caregivers’ needs, experiences, preferences and research priorities in spiritual care: A focus group study across nine countries. Palliative Medicine, 32, 216-230.
  • Silva, E. M. B., Silva, M. J. M., & Silva, D. M. (2019). Perception of health professionals about neonatal palliative care. Revista brasileira de enfermagem, 72(6), 1707-1714.
  • Steinhauser, K. E., Fitchett, G., Handzo, G. F., Johnson, K. S., Koenig, H. G., Pargament, K. I., ... & Balboni, T. A. (2017). State of the science of spirituality and palliative care research part I: Definitions, measurement, and outcomes. Journal of Pain and Symptom Management, 54(3), 428-440.
  • Şentürk, S. G., Küçükgüçlü, Ö., & Watson, J. (2017). Watson İnsan Bakım Teorisi’nin Perspektifinden: Demans Hastalığı Olan Bireye Bakımverenlerin Bakımı. Hacettepe Üniversitesi Hemşirelik Fakültesi Dergisi, 4(1), 62-72.
  • The British Association of Perinatal Medicine (2010). Palliative Care (Supportive and End of Life Care) A Framework for Clinical Practice in Perinatal Medicine. Report of the Working Group, August.
  • Ünal, S., & Zenciroğlu, A. (2016). Yenidoğanlarda Palyatif Bakım. Türkiye Çocuk Hastalıkları Dergisi, 10(2), 149-155.
  • Viallard, M. L., & Moriette, G. (2017). Palliative care for newborn infants with congenital malformations or genetic abnormalities. Archives de pediatrie: organe officiel de la Societe francaise de pediatrie, 24(2), 169-174.
  • Walker, H., & Waterworth, S. (2017). New Zealand palliative care nurses experiences of providing spiritual care to patients with life-limiting illness. International Journal of Palliative Nursing, 23(1), 18-26.
  • Watson, J., &Woodward, T. K. (2020). Jean Watson's Theory of human caring. SAGE Publications Limited.
  • WHO, (2014). Global Atlas of Palliative Care at the End of Life. chrome-extension://efaidnbmnnnibpcajpcglclefindmkaj/https://www.iccp-portal.org/system/files/resources/Global_Atlas_of_Palliative_Care.pdf, Erişim:12.09.2020.
  • WHO, (2020). Definition of palliative care. https://www.who.int/cancer/palliative/definition/en/, Erişim:20.09.2020.
  • WHO, (2020). Palliative Care. https://www.who.int/news-room/fact-sheets/detail/palliative-care, Erişim: 20.09.2020.
  • Zamani, P., Dehnad, A., Haghani, H., & Borimnejad, L. (2019). Effect of Web-Based Education on Knowledge, Attitude, and Practice of Nurses in Neonatal Intensive Care Unit. Interdisciplinary Journal of Virtual Learning in Medical Sciences, 10(1), 10-20.
  • Zamanzadeh, V., Jasemi, M., Valizadeh, L., Keogh, B., &Taleghani, F. (2015). Effective factors in providing holistic care: a qualitative study. Indian journal of palliative care, 21(2), 214-224.
  • Zuniga-Villanueva, G., Widger, K., Medeiros, C., Trenholm, M., & Streuli, J. C. (2021). Specialized Pediatric Palliative Care in Neonates with Life-Limiting Illness: A Systematic Review. American Journal of Perinatology, 38(S 01), e318-e329
Toplam 56 adet kaynakça vardır.

Ayrıntılar

Birincil Dil İngilizce
Konular Çocuk Sağlığı ve Hastalıkları Hemşireliği
Bölüm Research Article
Yazarlar

Rukiye Çelik 0000-0002-0609-2693

Ebru Kılıçarslan Törüner 0000-0002-3358-7616

Yayımlanma Tarihi 24 Aralık 2023
Yayımlandığı Sayı Yıl 2023 Cilt: 25 Sayı: 3

Kaynak Göster

APA Çelik, R., & Kılıçarslan Törüner, E. (2023). Palliative Care and Spirituality in Neonatal Nursing: Literature Review. Hemşirelikte Araştırma Geliştirme Dergisi, 25(3), 56-75.