Depression, anxiety and stress levels in caregivers of palliative patients: a descriptive, cross-sectional study

Songül Duran; Serap Kaynak; Ayse Karadas

doi:10.22391/fppc.532571

Araştırma Makalesi

Palyatif bakım hastasına bakım verenlerde depresyon, anksiyete ve stres düzeyi: tanımlayıcı-kesitsel tipte bir çalışma

Yıl 2019, , 120 - 125, 31.12.2019

Songül Duran , Serap Kaynak , Ayse Karadas

https://doi.org/10.22391/fppc.532571

Cited By: 2

Öz

Giriş: Palyatif hastasına
bakım vermek stresli ve zorlayıcı bir durum olup bakım verenin fiziksel,
duygusal, psikolojik ve sosyal refahını etkilemektedir. Bu çalışmanın amacı
palyatif bakım hastasına bakım verenlerin depresyon, anksiyete ve stres
düzeylerinin ve bunları etkileyen faktörlerin incelenmesidir.

Yöntem: Kesitsel tipteki bu çalışma Balıkesir
ve Edirne ilinde yer alan birer hastanenin palyatif bakım ünitesinde yatan
hastaların bakım verenleri (n=234) ile yürütülmüştür. Çalışma Nisan 2018 ve
Ocak 2019 tarihleri arasında yürütülmüştür. Veriler sosyo-demografik veri
toplama formu ve Depresyon Anksiyete Stres Ölçeği (DASÖ) ile toplanmıştır.

Bulgular: Çalışmada da palyatif hastasına bakım verenlerin %20,1’inde ileri ve çok
ileri düzeyde depresyon saptanmıştır. Bu değer
anksiyete için %32, stres için
%12,4 düzeyindedir. Kronik hastalığı olan ve hasta ile aynı yerde ikamet
edenlerde DASÖ puanı daha yüksek düzeyde bulunmuştur.

Sonuç: Palyatif hastasına bakım verenlere psikososyal destek
sağlanması hem hasta hem de bakım verenin yaşam kalitesini arttırabilir. Sadece
hastaya değil bakım verene de gerekli müdahalelerin yapılması önerilmektedir.

Anahtar Kelimeler

Palyatif bakım, depresyon, anksiyete, stres, bakım veren

Kaynakça

1. Elcigil A. [Palliative care nursing] (in Turkish). Gulhane Tip Derg 2012;54:329-34. https://doi.org/10.5455/gulhane.30582
2. Koç M, Okan I. [Psychosocial problems in families of patients receiving palliative care] (in Turkish). Turkiye Klinikleri J Psychiatr Nurs-Special Topics 2017;3(1):69-75.
3. McCorkle R, Pasacreta JV. Enhancing caregiver outcomes in palliative care. Cancer Control 2001;8(1):36-45. https://doi.org/10.1177/107327480100800106
4. Ozdemir, F. [Investigation of the relationship between psychosocial problems of relatives of patients receiving palliative care and religious coping styles] (in Turkish). Master’s thesis, İstanbul Medipol University, Health Sciences Institute, Department of Nursing, Istanbul; 2016.
5. Atagun MI, Balaban OD, Atagun Z, Elagoz M, Ozpolat, YA. [Burden of caregivers in chronic diseases] (in Turkish). Current Approaches in Psychiatry 2011;3(3):513-52. https://doi.org/10.5455/cap.20110323
6. Antony L, George LS, Jose TT. Stress, coping, and lived experiences among caregivers of cancer patients on palliative care: A mixed method research. Indian J Palliat Care 2018;24(3):313-9. https://doi.org/10.4103/IJPC.IJPC_178_17
7. Paiva BS, Carvalho AL, Lucchetti G, Barroso EM, Paiva CE. "Oh, yeah, I'm getting closer to god": Spirituality and religiousness of family caregivers of cancer patients undergoing palliative care. Support Care Cancer 2015;23(8):2383-9. https://doi.org/10.1007/s00520-015-2604-1
8. Hudson P, Quinn K, Kristjanson L, Thomas T, Braithwaite M, Fisher J, et al. Evaluation of a psycho-educational group programme for family caregivers in home-based palliative care. Palliat Med 2008;22(3):270-80. https://doi.org/10.1177/0269216307088187
9. Kristjanson LJ, Aoun S. Palliative care for families: Remembering the hidden patients. Can J Psychiatry 2004;49(6):359-65. https://doi.org/10.1177/070674370404900604
10. Harding R, List S, Epiphaniou E, Jones H. How can informal caregivers in cancer and palliative care be supported? An updated systematic literature review of interventions and their effectiveness. Palliat Med 2012;26:7-22. https://doi.org/10.1177/0269216311409613
11. Hudson P, Payne S. Family caregivers and palliative care: Current status and agenda for the future. J Palliat Med 2011;14(7):864-9. https://doi.org/10.1089/jpm.2010.0413
12. Hudson PL, Remedios C, Thomas KA. Systematic review of psychosocial interventions for family careers of palliative care patients. BMC Palliat Care 2010;9:2-6. https://doi.org/10.1186/1472-684X-9-17
13. Aoun S, Deas K, Toye C, Ewing G, Grande G, Stajduhar K. Supporting family caregivers to identify their own needs in end-of life care: Qualitive findings from a stepped wedge clustral trial. Palliat Med 2004;29(6):508-17. https://doi.org/10.1177/0269216314566061
14. Akin A, Cetin B. [Depression Anxiety Stress Scales: Validity and reliability study] (in Turkish). Kuram ve Uygulamada Eğitim Bilimleri 2007;7(1);241-68.
15. Grov EK, Dahl AA, Moum T, Fossa SD. Anxiety, depression, and quality of life in caregivers of patients with cancer in late palliative phase. Ann Oncol 2005;16(7):1185–91. https://doi.org/10.1093/annonc/mdi210
16. Oechsle K, Goerth K, Bokemeyer C, Mehnert A. Anxiety and depression in caregivers of terminally ill cancer patients: impact on their perspective of the patients' symptom burden. J Palliat Med 2013;16(9):1095-101. https://doi.org/10.1089/jpm.2013.0038
17. Götze H, Brähler E, Gansera L, Schnabel A, Gottschalk-Fleischer A, Köhler N. Anxiety, depression and quality of life in family caregivers of palliative cancer patients during home care and after the patient’s death. Eur J Cancer Care 2018;27(2):e12606. https://doi.org/10.1111/ecc.12606
18. Palacio C, Krikorian A, Limonero JT. The influence of psychological factors on the burden of caregivers of patients with advanced cancer: Resiliency and caregiver burden. Palliat Support Care 2017;16(3):269-77. https://doi.org/10.1017/S1478951517000268
19. Park B, Kim SY, Shin JY, Sanson-Fisher RW, Shin DW, Cho J, et al. Prevalence and predictors of anxiety and depression among family caregivers of cancer patients:a nationwide survey of patient-family caregiver dyads in Korea. Support Care Cancer 2013;21(10):2799-807. https://doi.org/10.1007/s00520-013-1852-1
20. Perez-Ordóñez F, Frías-Osuna A, Romero-Rodríguez Y, Del-Pino-Casado R. Coping strategies and anxiety in caregivers of palliative cancer patients. Eour J Cancer Care 2016;25(4):600-7. https://doi.org/10.1111/ecc.12507
21. Daştan NB, Buzlu S. [Psychosocial problems and psychosocial care in families of cancer patients] (İn Turkish). Türkiye Klinikleri 2018;4(1):67-73.
22. Geng HM, Chuang M, Yang F, Yang Y, Liu W, Liu L, et al. Prevalence and determinants of depression in caregivers of cancer patients: A systematic review and meta-analysis. Medicine [Baltimore] 2018;97(39):e11863. https://doi.org/10.1097/MD.0000000000011863
23. Zyad F, Sheta M, Degwi HE, Saad R. Anxiety, depression, and strain among caregivers of terminally ill patients. Egyptian J Psychiatr 2013;34:77-84. https://doi.org/10.7123/01.EJP.0000419667.93575.14
24. Laidlaw TM, Coverdale JH, Falloon IRH, Kydd RR. Caregivers’ stresses when living together or apart from patients with chronic schizophrenia. Community Ment Health J 2002;38(4):303-10. https://doi.org/10.1023/A:1015949325141

Depression, anxiety and stress levels in caregivers of palliative patients: a descriptive, cross-sectional study

Yıl 2019, , 120 - 125, 31.12.2019

Songül Duran , Serap Kaynak , Ayse Karadas

https://doi.org/10.22391/fppc.532571

Cited By: 2

Öz

Introduction: Caregiving of the palliative patient is a stressful
and challenging condition, affecting the caregiver’s physical, emotional,
psychological, and social well-being. This study aimed to determine depression,
anxiety, and stress levels of the caregivers of palliative care patients.

Methods: This cross-sectional study was conducted with
caregivers (n=234) in a palliative care unit of a hospital in Balıkesir and
Edirne between April 2018 and January 2019. The data were collected by a
socio-demographic questionnaire and the Depression Anxiety Stress Scale (DASS).

Results: Severe and extremely severe depression was detected in
20.1% of the caregivers of palliative patients. Anxiety and
stress were found in 32% and 12.4% of the respondents, respectively. The DASS score was higher in participants who had a chronic disease or were living with the
patients.

Conclusions: Providing psychosocial support
to caregivers of palliative patients may improve the quality of life of both
the patients and the caregivers. Necessary interventions are recommended not
only to the patients but also to the caregivers.

Anahtar Kelimeler

palliative care, depression, anxiety, stress, caregiver

Kaynakça

1. Elcigil A. [Palliative care nursing] (in Turkish). Gulhane Tip Derg 2012;54:329-34. https://doi.org/10.5455/gulhane.30582
2. Koç M, Okan I. [Psychosocial problems in families of patients receiving palliative care] (in Turkish). Turkiye Klinikleri J Psychiatr Nurs-Special Topics 2017;3(1):69-75.
3. McCorkle R, Pasacreta JV. Enhancing caregiver outcomes in palliative care. Cancer Control 2001;8(1):36-45. https://doi.org/10.1177/107327480100800106
4. Ozdemir, F. [Investigation of the relationship between psychosocial problems of relatives of patients receiving palliative care and religious coping styles] (in Turkish). Master’s thesis, İstanbul Medipol University, Health Sciences Institute, Department of Nursing, Istanbul; 2016.
5. Atagun MI, Balaban OD, Atagun Z, Elagoz M, Ozpolat, YA. [Burden of caregivers in chronic diseases] (in Turkish). Current Approaches in Psychiatry 2011;3(3):513-52. https://doi.org/10.5455/cap.20110323
6. Antony L, George LS, Jose TT. Stress, coping, and lived experiences among caregivers of cancer patients on palliative care: A mixed method research. Indian J Palliat Care 2018;24(3):313-9. https://doi.org/10.4103/IJPC.IJPC_178_17
7. Paiva BS, Carvalho AL, Lucchetti G, Barroso EM, Paiva CE. "Oh, yeah, I'm getting closer to god": Spirituality and religiousness of family caregivers of cancer patients undergoing palliative care. Support Care Cancer 2015;23(8):2383-9. https://doi.org/10.1007/s00520-015-2604-1
8. Hudson P, Quinn K, Kristjanson L, Thomas T, Braithwaite M, Fisher J, et al. Evaluation of a psycho-educational group programme for family caregivers in home-based palliative care. Palliat Med 2008;22(3):270-80. https://doi.org/10.1177/0269216307088187
9. Kristjanson LJ, Aoun S. Palliative care for families: Remembering the hidden patients. Can J Psychiatry 2004;49(6):359-65. https://doi.org/10.1177/070674370404900604
10. Harding R, List S, Epiphaniou E, Jones H. How can informal caregivers in cancer and palliative care be supported? An updated systematic literature review of interventions and their effectiveness. Palliat Med 2012;26:7-22. https://doi.org/10.1177/0269216311409613
11. Hudson P, Payne S. Family caregivers and palliative care: Current status and agenda for the future. J Palliat Med 2011;14(7):864-9. https://doi.org/10.1089/jpm.2010.0413
12. Hudson PL, Remedios C, Thomas KA. Systematic review of psychosocial interventions for family careers of palliative care patients. BMC Palliat Care 2010;9:2-6. https://doi.org/10.1186/1472-684X-9-17
13. Aoun S, Deas K, Toye C, Ewing G, Grande G, Stajduhar K. Supporting family caregivers to identify their own needs in end-of life care: Qualitive findings from a stepped wedge clustral trial. Palliat Med 2004;29(6):508-17. https://doi.org/10.1177/0269216314566061
14. Akin A, Cetin B. [Depression Anxiety Stress Scales: Validity and reliability study] (in Turkish). Kuram ve Uygulamada Eğitim Bilimleri 2007;7(1);241-68.
15. Grov EK, Dahl AA, Moum T, Fossa SD. Anxiety, depression, and quality of life in caregivers of patients with cancer in late palliative phase. Ann Oncol 2005;16(7):1185–91. https://doi.org/10.1093/annonc/mdi210
16. Oechsle K, Goerth K, Bokemeyer C, Mehnert A. Anxiety and depression in caregivers of terminally ill cancer patients: impact on their perspective of the patients' symptom burden. J Palliat Med 2013;16(9):1095-101. https://doi.org/10.1089/jpm.2013.0038
17. Götze H, Brähler E, Gansera L, Schnabel A, Gottschalk-Fleischer A, Köhler N. Anxiety, depression and quality of life in family caregivers of palliative cancer patients during home care and after the patient’s death. Eur J Cancer Care 2018;27(2):e12606. https://doi.org/10.1111/ecc.12606
18. Palacio C, Krikorian A, Limonero JT. The influence of psychological factors on the burden of caregivers of patients with advanced cancer: Resiliency and caregiver burden. Palliat Support Care 2017;16(3):269-77. https://doi.org/10.1017/S1478951517000268
19. Park B, Kim SY, Shin JY, Sanson-Fisher RW, Shin DW, Cho J, et al. Prevalence and predictors of anxiety and depression among family caregivers of cancer patients:a nationwide survey of patient-family caregiver dyads in Korea. Support Care Cancer 2013;21(10):2799-807. https://doi.org/10.1007/s00520-013-1852-1
20. Perez-Ordóñez F, Frías-Osuna A, Romero-Rodríguez Y, Del-Pino-Casado R. Coping strategies and anxiety in caregivers of palliative cancer patients. Eour J Cancer Care 2016;25(4):600-7. https://doi.org/10.1111/ecc.12507
21. Daştan NB, Buzlu S. [Psychosocial problems and psychosocial care in families of cancer patients] (İn Turkish). Türkiye Klinikleri 2018;4(1):67-73.
22. Geng HM, Chuang M, Yang F, Yang Y, Liu W, Liu L, et al. Prevalence and determinants of depression in caregivers of cancer patients: A systematic review and meta-analysis. Medicine [Baltimore] 2018;97(39):e11863. https://doi.org/10.1097/MD.0000000000011863
23. Zyad F, Sheta M, Degwi HE, Saad R. Anxiety, depression, and strain among caregivers of terminally ill patients. Egyptian J Psychiatr 2013;34:77-84. https://doi.org/10.7123/01.EJP.0000419667.93575.14
24. Laidlaw TM, Coverdale JH, Falloon IRH, Kydd RR. Caregivers’ stresses when living together or apart from patients with chronic schizophrenia. Community Ment Health J 2002;38(4):303-10. https://doi.org/10.1023/A:1015949325141

Toplam 24 adet kaynakça vardır.

Ayrıntılar

Birincil Dil	İngilizce
Konular	Klinik Tıp Bilimleri
Bölüm	Araştırma Makalesi (Original Article)
Yazarlar	Songül Duran 0000-0002-2565-7784 Serap Kaynak 0000-0001-9482-5254 Ayse Karadas 0000-0003-3955-2980
Yayımlanma Tarihi	31 Aralık 2019
Gönderilme Tarihi	26 Şubat 2019
Kabul Tarihi	29 Temmuz 2019
Yayımlandığı Sayı	Yıl 2019

Kaynak Göster

APA	Duran, S., Kaynak, S., & Karadas, A. (2019). Depression, anxiety and stress levels in caregivers of palliative patients: a descriptive, cross-sectional study. Family Practice and Palliative Care, 4(3), 120-125. https://doi.org/10.22391/fppc.532571
AMA	Duran S, Kaynak S, Karadas A. Depression, anxiety and stress levels in caregivers of palliative patients: a descriptive, cross-sectional study. Fam Pract Palliat Care. Aralık 2019;4(3):120-125. doi:10.22391/fppc.532571
Chicago	Duran, Songül, Serap Kaynak, ve Ayse Karadas. “Depression, Anxiety and Stress Levels in Caregivers of Palliative Patients: A Descriptive, Cross-Sectional Study”. Family Practice and Palliative Care 4, sy. 3 (Aralık 2019): 120-25. https://doi.org/10.22391/fppc.532571.
EndNote	Duran S, Kaynak S, Karadas A (01 Aralık 2019) Depression, anxiety and stress levels in caregivers of palliative patients: a descriptive, cross-sectional study. Family Practice and Palliative Care 4 3 120–125.
IEEE	S. Duran, S. Kaynak, ve A. Karadas, “Depression, anxiety and stress levels in caregivers of palliative patients: a descriptive, cross-sectional study”, Fam Pract Palliat Care, c. 4, sy. 3, ss. 120–125, 2019, doi: 10.22391/fppc.532571.
ISNAD	Duran, Songül vd. “Depression, Anxiety and Stress Levels in Caregivers of Palliative Patients: A Descriptive, Cross-Sectional Study”. Family Practice and Palliative Care 4/3 (Aralık 2019), 120-125. https://doi.org/10.22391/fppc.532571.
JAMA	Duran S, Kaynak S, Karadas A. Depression, anxiety and stress levels in caregivers of palliative patients: a descriptive, cross-sectional study. Fam Pract Palliat Care. 2019;4:120–125.
MLA	Duran, Songül vd. “Depression, Anxiety and Stress Levels in Caregivers of Palliative Patients: A Descriptive, Cross-Sectional Study”. Family Practice and Palliative Care, c. 4, sy. 3, 2019, ss. 120-5, doi:10.22391/fppc.532571.
Vancouver	Duran S, Kaynak S, Karadas A. Depression, anxiety and stress levels in caregivers of palliative patients: a descriptive, cross-sectional study. Fam Pract Palliat Care. 2019;4(3):120-5.