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Research Article
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Palyatif bakım hastalarına bakım veren bireylerde bakim yükü ve yaşam kalitesi

Year 2025, Volume: 10 Issue: 2, 38 - 43, 27.06.2025

Yaşar Demir , Erhan Dağ , Saliha Özpınar

https://doi.org/10.22391/fppc.1471914

Abstract

Giriş: Palyatif bakım, yaygın olarak tedavi edici yaklaşımların yetersiz kaldığı yaşamı tehdit eden durumlarda hasta ve yakınlarına verilen destekleyici bakım olarak ifade edilmektedir. Palyatif bakım gerektiren hastalıklar, hasta kadar hasta yakınlarını da etkileyen bir süreçtir. Bu durum, ekonomik, fiziksel, ruhsal ve sosyal boyutlarda etkiler yaratabilir. Bakım verenler, bakım yükünün çeşitli faktörlerinden doğrudan etkilenirler. Bu nedenle bu çalışmanın amacı, bakım verenlerin sosyo-demografik özelliklerinin ve bakım yükünün yaşam kalitesine etkisini değerlendirmektir.
Yöntem: Çalışma kesitsel tiptedir. Çalışmanın evrenini Samsun’da üç kamu hastanesinde 1 Temmuz 2023- 30 Kasım 2023 tarihleri arasında palyatif bakım servislerinde yatan hasta yakınları oluşturmaktadır. Çalışmada örneklem hesaplamasına gidilmeyip çalışmaya katılmayı kabul eden tüm hasta yakınları çalışmaya alındı (n=317). Çalışma verileri hastaların ve bakım verenlerin sosyo-demografik özelliklerini ortaya çıkarmayı amaçlayan “Hasta ve Bakım Veren Bilgi Formu”, Bakım Yükü Verme Ölçeği” ve “Yaşam Kalitesi Ölçeği” kullanılarak toplandı. Çalışmada yüzde, frekans, korelasyon ve çoklu regresyon analizi kullanıldı.
Bulgular: Hastaların yaş ortalaması X̄=65.48±11.81, %54.6’sı erkek ve %63.7’si nörolojik hastalıklar nedeniyle tedavi olmaktadır. Bakım verenlerin yaş ortalaması X̄=39.8±9.16, %55,2’si kadındır. Çalışmada bakım yükü ölçeği ortalaması (X̄=51.78) ve yaşam kalitesi ortalaması (X̄ =17.77) tespit edildi. Bakım yükü ile yaşam kalitesi arasında negatif yönlü orta düzeyde bir ilişki tespit edildi (r=-0.611, p<0.001). Çoklu regresyon analizi sonuçlarına göre de yaşam kalitesinin yaş, yakınlık derecesi ve bakım yükünden etkilendiği belirlendi (p<0.05).
Sonuç: Çalışma sonucunda bakım yükü arttıkça yaşam kalitesinin düştüğü belirlendi.

Keywords

Palyatif Bakım Bakım Yükü Yaşam Kalitesi

Ethical Statement

Ethical approval for the study was obtained from Alanya Alaaddin Keykubat University Non-Interventional Clinical Research Ethics Committee with the date 06.06.2023 and number 10. Informed consent signed by all participants prior to the survey.

References

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  • 11. Thana K, Lehto R, Sikorskii A, Wyatt G. Informal caregiver burden for solid tumour cancer patients: a review and future directions. Psychol Health. 2021;36(12):1514-1535. https://doi.org/10.1080/08870446.2020.1867136
  • 12. Tulek Z, Baykal D, Erturk S, Bilgic B, Hanagasi H, Gurvit IH. Caregiver Burden, Quality of Life and Related Factors in Family Caregivers of Dementia Patients in Turkey. Issues Ment Health Nurs. 2020;41(8):741-749. https://doi.org/10.1080/01612840.2019.1705945
  • 13. De Korte-Verhoef MC, Pasman HRW, Schweitzer BP, Francke AL, Onwuteaka-Philipsen BD, Deliens L. Burden for family carers at the end of life; A mixed-method study of the perspectives of family carers and GPs. BMC Palliat Care. 2014;13(1). https://doi.org/10.1186/1472-684X-13-16
  • 14. Kulkarni P, Kulkarni P, Ghooi R, Bhatwadekar M, Thatte N, Anavkar V. Stress among care givers: The impact of nursing a relative with cancer. Indian J Palliat Care. 2014;20(1):31-39. https://doi.org/10.4103/0973-1075.125554
  • 15. Hui D, Heung Y, Bruera E. Timely Palliative Care: Personalizing the Process of Referral. Cancers (Basel). 2022;14(4). https://doi.org/10.3390/cancers14041047
  • 16. Liu Z, Heffernan C, Tan J. Caregiver burden: A concept analysis. Int J Nurs Sci. 2020;7(4):438-445. https://doi.org/10.1016/j.ijnss.2020.07.012
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  • 18. Çolak B, Kahriman İ. Evaluation of Family Burden and Quality of Life of Parents with Children with Disability. American Journal of Family Therapy. 2023;51(2):113-133. https://doi.org/10.1080/01926187.2021.1941421
  • 19. Zarit SH, Zarit JM. The memory and behavior problems checklist and the burden interview. Gerontology Center,The Pennsylvania State University. Published online 1990.
  • 20. İnci FH, Erdem M. Bakım Verme Yükü Ölçeği'nin Türkçe'ye Uyarlanması Geçerlilik Ve Güvenilirliği. Anadolu Hemşirelik ve Sağlık Bilimleri Dergisi. 2006;11(4):85-95.
  • 21. Eser E, Lağarlı T, Baydur H, et al. Orijinal Çalışma EUROHIS (WHOQOL-8.Tr) Türkçe Sürümünün Türk Toplumundaki Psikometrik Özellikleri. Vol 8.; 2010.
  • 22. Şener A, Kurtgöz A, Koç Z. Palyatif Bakım Ünitesinde Yatan Hastaların Bakımından Sorumlu Hasta Yakınlarının Bakım Yükleri ile Yaşam Doyumlarının Belirlenmesi. Celal Bayar Üniversitesi Sağlık Bilimleri Enstitüsü Dergisi. 2022;9(1):63-70. https://doi.org/10.34087/cbusbed.974401
  • 23. Kaplan E, Beydağ K.D. Evde Yatağa Bağımlı Hastaya Bakım Veren Bireylerde Bakım Yükü ve Spiritüel İyi Oluş İlişkisi. Fenerbahçe Üniversitesi Sağlık Bilimleri Dergisi. 2023;3(1):11-21. https://doi.org/10.56061/fbujohs.1104915
  • 24. Dökmen ZY. Yakınlarına Bakım Verenlerin Ruh Sağlıkları İle Sosyal Destek Algıları Arasındaki İlişkiler. Ankara Üniversitesi Sosyal Bilimler Enstitüsü Dergisi. 2012;3(1). https://doi.org/10.1501/sbeder_0000000038
  • 25. Kol R, Karabulutlu Y. Kronik Hastalığı Olan Bireylere Bakım Verenlerin Bakım Yükü ve İyilik Halinin Değerlendirilmesi. Kocaeli Med J. Published online 2021:119-127.
  • 26. Özmen S, Yurttas A. Determination of care burden of caregivers of patients with multiple sclerosis in Turkey. Behavioural Neurology. 2018;2018. https://doi.org/10.1155/2018/7205046
  • 27. Göksel F, Şenel G, Oğuz G, et al. Development of palliative care services in Turkey. Eur J Cancer Care (Engl). 2020;29(6). https://doi.org/10.1111/ecc.13285
  • 28. Karakaya C, Işıkhan V. Palyatif Bakım Hastalarına Bakım Veren Aile Üyelerinde Yaşam Kalitesinin Değerlendirilmesi. Toplum ve Sosyal Hizmet. 2020;31(4):1437-1458. https://doi.org/10.33417/tsh.737324
  • 29. Cengiz Z, Turan M, Olmaz D, Erce Ç. Care Burden and Quality of Life in Family Caregivers of Palliative Care Patients. J Soc Work End Life Palliat Care. 2021;17(1):50-63. https://doi.org/10.1080/15524256.2021.1888844
  • 30. Caro CC, Costa JD, Da Cruz DMC. Burden and Quality of Life of Family Caregivers of Stroke Patients. Occup Ther Health Care. 2018;32(2):154-171. https://doi.org/10.1080/07380577.2018.1449046
  • 31. Barros ALO, de Gutierrez GM, Barros AO, Santos MTBR. Quality of life and burden of caregivers of children and adolescents with disabilities. Special Care in Dentistry. Published online 2019. https://doi.org/10.1111/scd.12400
  • 32. Abbasi A, Mirhosseini S, Basirinezhad MH, Ebrahimi H. Relationship between caring burden and quality of life in caregivers of cancer patients in Iran. Supportive Care in Cancer. 2020;28(9):4123-4129. https://doi.org/10.1007/s00520-019-05240-y
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  • 34. Orak OS. Caregiver Burden in Family Members of Cancer Patients. J Psychiatr Nurs. Published online 2015. https://doi.org/10.5505/phd.2015.02986
  • 35. Demir Dikmen R, Üşenmez TY. Maneviyat düzeyi-bakım verme yükü ilişkisi: palyatif bakım hastalarına bakım verenlerde kesitsel bir çalışma. Perspectives in Palliative & Home Care. 2022;1(1)(1(1)):8-13. https://doi.org/10.29228/pphcjournal.66353
  • 36. Öztürk Kaynar G, Vural F. Assessment of the Caregiver Burden of Caregivers of Colorectal Cancer Patients. Turkish Journal of Colorectal Disease. 2018;28(4):164-171. https://doi.org/10.4274/tjcd.26121

Caregiving burden and quality of life in individuals caring for palliative care patients

Year 2025, Volume: 10 Issue: 2, 38 - 43, 27.06.2025

Yaşar Demir , Erhan Dağ , Saliha Özpınar

https://doi.org/10.22391/fppc.1471914

Abstract

Introduction: Palliative care is commonly defined as supportive care given to patients and their relatives in life-threatening situations where therapeutic approaches are insufficient. Diseases requiring palliative care are a process that affects the relatives as well as the patient. This can have economic, physical, psychological, and social impacts. Caregivers are directly affected by numerous factors of care burden. Therefore, the aim of this study was to evaluate the effect of socio-demographic characteristics of caregivers and care burden on quality of life.
Methods: The study was cross-sectional. The study population consisted of the relatives of patients hospitalised in palliative care services in three public hospitals in Samsun between 1 July 2023 and 30 November 2023. No sample calculation was made in the study, and all relatives of patients who agreed to participate in the study were included (n=317). The study data were collected using the “Patient and Caregiver Information Form,” the “Caregiving Burden Scale”, and the “Quality of Life Scale”, which aim to reveal the socio-demographic characteristics of patients and caregivers. Percentage, frequency, correlation, and multiple regression analysis were used in the study.
Results: The mean age of the patients was X̄=65.48±11.81, 54.6% were male and 63.7% were being treated for neurological diseases. The mean age of caregivers was X̄=39.8±9.16, 55.2% were female. The mean care burden scale (X̄=51.78) and mean quality of life (X̄=17.77) were determined in the study. A moderate negative relationship was found between care burden and quality of life (r=-0.611, p<0.001). According to the results of multiple regression analysis, it was determined that quality of life was affected by age, degree of closeness and caregiving burden (p<0.05).
Conclusion: As a result of the study, it was determined that quality of life decreased as the caregiving burden increased.

Keywords

Palliative Care Caregiving Burden Quality of Life

Ethical Statement

Ethical approval for the study was obtained from Alanya Alaaddin Keykubat University Non-Interventional Clinical Research Ethics Committee with the date 06.06.2023 and number 10. Informed consent signed by all participants prior to the survey.

References

  • 1. Madenoğlu Kıvanç M. Türkiye'de Palyatif Bakım Hizmetleri. Sağlık Bilimleri ve Meslekleri Dergisi. Published online June 11, 2017:141-141. https://doi.org/10.17681/hsp-dergisi.316894
  • 2. Cengiz Z, Turan M, Olmaz D, Erce Ç. Care Burden and Quality of Life in Family Caregivers of Palliative Care Patients. J Soc Work End Life Palliat Care. 2021;17(1):50-63. https://doi.org/10.1080/15524256.2021.1888844
  • 3. Taşkın Egici M, Kök Can M, Toprak D, et al. Burden and Burnout of Caregivers Whose Patients Treated at the Palliative Care Center. Journal of Academic Research In Nursing. Published online 2019. https://doi.org/10.5222/jaren.2019.38247
  • 4. Sahin S, Toprak S, nal E. QALY: Quality Adjusted Life Year. Medicine Science | International Medical Journal. 2012;1(3):232. https://doi.org/10.5455/medscience.2012.01.8024
  • 5. Yigitalp G, Gumus F. Predictors of Caregiver Burden in Primary Caregivers of Chronic Patients. Vol 10.; 2017. www.internationaljournalofcaringsciences.org
  • 6. Özyeşil Z, Oluk A, Çakmak D. Yaşli hastalara bakim verme yükünün durumluk-sürekli kaygiyi yordama düzeyi. Anadolu Psikiyatri Derg. 2014;15(1):39-44. https://doi.org/10.5455/apd.39820
  • 7. WHO. Assessıng Natıonal Capacıty For The Preventıon And Control Of Noncommunıcable Dıseases. https://www.who.int/publications/i/item/9789240071698
  • 8. WHO. palliative care. https://www.who.int/news-room/fact-sheets/detail/palliative-care
  • 9. KHGM. https://khgmsaglikhizmetleridb.saglik.gov.tr/TR,42938/palyatif-bakim-hizmetlerinin-uygulama-usul-ve-esaslari-hakkinda-yonerge
  • 10. Caro CC, Costa JD, Da Cruz DMC. Burden and Quality of Life of Family Caregivers of Stroke Patients. Occup Ther Health Care. 2018;32(2):154-171. https://doi.org/10.1080/07380577.2018.1449046
  • 11. Thana K, Lehto R, Sikorskii A, Wyatt G. Informal caregiver burden for solid tumour cancer patients: a review and future directions. Psychol Health. 2021;36(12):1514-1535. https://doi.org/10.1080/08870446.2020.1867136
  • 12. Tulek Z, Baykal D, Erturk S, Bilgic B, Hanagasi H, Gurvit IH. Caregiver Burden, Quality of Life and Related Factors in Family Caregivers of Dementia Patients in Turkey. Issues Ment Health Nurs. 2020;41(8):741-749. https://doi.org/10.1080/01612840.2019.1705945
  • 13. De Korte-Verhoef MC, Pasman HRW, Schweitzer BP, Francke AL, Onwuteaka-Philipsen BD, Deliens L. Burden for family carers at the end of life; A mixed-method study of the perspectives of family carers and GPs. BMC Palliat Care. 2014;13(1). https://doi.org/10.1186/1472-684X-13-16
  • 14. Kulkarni P, Kulkarni P, Ghooi R, Bhatwadekar M, Thatte N, Anavkar V. Stress among care givers: The impact of nursing a relative with cancer. Indian J Palliat Care. 2014;20(1):31-39. https://doi.org/10.4103/0973-1075.125554
  • 15. Hui D, Heung Y, Bruera E. Timely Palliative Care: Personalizing the Process of Referral. Cancers (Basel). 2022;14(4). https://doi.org/10.3390/cancers14041047
  • 16. Liu Z, Heffernan C, Tan J. Caregiver burden: A concept analysis. Int J Nurs Sci. 2020;7(4):438-445. https://doi.org/10.1016/j.ijnss.2020.07.012
  • 17. Perpiñá-Galvañ J, Orts-Beneito N, Fernández-Alcántara M, García-Sanjuán S, García-Caro MP, Cabañero-Martínez MJ. Level of burden and health-related quality of life in caregivers of palliative care patients. Int J Environ Res Public Health. 2019;16(23). https://doi.org/10.3390/ijerph16234806
  • 18. Çolak B, Kahriman İ. Evaluation of Family Burden and Quality of Life of Parents with Children with Disability. American Journal of Family Therapy. 2023;51(2):113-133. https://doi.org/10.1080/01926187.2021.1941421
  • 19. Zarit SH, Zarit JM. The memory and behavior problems checklist and the burden interview. Gerontology Center,The Pennsylvania State University. Published online 1990.
  • 20. İnci FH, Erdem M. Bakım Verme Yükü Ölçeği'nin Türkçe'ye Uyarlanması Geçerlilik Ve Güvenilirliği. Anadolu Hemşirelik ve Sağlık Bilimleri Dergisi. 2006;11(4):85-95.
  • 21. Eser E, Lağarlı T, Baydur H, et al. Orijinal Çalışma EUROHIS (WHOQOL-8.Tr) Türkçe Sürümünün Türk Toplumundaki Psikometrik Özellikleri. Vol 8.; 2010.
  • 22. Şener A, Kurtgöz A, Koç Z. Palyatif Bakım Ünitesinde Yatan Hastaların Bakımından Sorumlu Hasta Yakınlarının Bakım Yükleri ile Yaşam Doyumlarının Belirlenmesi. Celal Bayar Üniversitesi Sağlık Bilimleri Enstitüsü Dergisi. 2022;9(1):63-70. https://doi.org/10.34087/cbusbed.974401
  • 23. Kaplan E, Beydağ K.D. Evde Yatağa Bağımlı Hastaya Bakım Veren Bireylerde Bakım Yükü ve Spiritüel İyi Oluş İlişkisi. Fenerbahçe Üniversitesi Sağlık Bilimleri Dergisi. 2023;3(1):11-21. https://doi.org/10.56061/fbujohs.1104915
  • 24. Dökmen ZY. Yakınlarına Bakım Verenlerin Ruh Sağlıkları İle Sosyal Destek Algıları Arasındaki İlişkiler. Ankara Üniversitesi Sosyal Bilimler Enstitüsü Dergisi. 2012;3(1). https://doi.org/10.1501/sbeder_0000000038
  • 25. Kol R, Karabulutlu Y. Kronik Hastalığı Olan Bireylere Bakım Verenlerin Bakım Yükü ve İyilik Halinin Değerlendirilmesi. Kocaeli Med J. Published online 2021:119-127.
  • 26. Özmen S, Yurttas A. Determination of care burden of caregivers of patients with multiple sclerosis in Turkey. Behavioural Neurology. 2018;2018. https://doi.org/10.1155/2018/7205046
  • 27. Göksel F, Şenel G, Oğuz G, et al. Development of palliative care services in Turkey. Eur J Cancer Care (Engl). 2020;29(6). https://doi.org/10.1111/ecc.13285
  • 28. Karakaya C, Işıkhan V. Palyatif Bakım Hastalarına Bakım Veren Aile Üyelerinde Yaşam Kalitesinin Değerlendirilmesi. Toplum ve Sosyal Hizmet. 2020;31(4):1437-1458. https://doi.org/10.33417/tsh.737324
  • 29. Cengiz Z, Turan M, Olmaz D, Erce Ç. Care Burden and Quality of Life in Family Caregivers of Palliative Care Patients. J Soc Work End Life Palliat Care. 2021;17(1):50-63. https://doi.org/10.1080/15524256.2021.1888844
  • 30. Caro CC, Costa JD, Da Cruz DMC. Burden and Quality of Life of Family Caregivers of Stroke Patients. Occup Ther Health Care. 2018;32(2):154-171. https://doi.org/10.1080/07380577.2018.1449046
  • 31. Barros ALO, de Gutierrez GM, Barros AO, Santos MTBR. Quality of life and burden of caregivers of children and adolescents with disabilities. Special Care in Dentistry. Published online 2019. https://doi.org/10.1111/scd.12400
  • 32. Abbasi A, Mirhosseini S, Basirinezhad MH, Ebrahimi H. Relationship between caring burden and quality of life in caregivers of cancer patients in Iran. Supportive Care in Cancer. 2020;28(9):4123-4129. https://doi.org/10.1007/s00520-019-05240-y
  • 33. Selçuk KT,, Avcı D. Kronik hastalığa sahip yaşlılara bakım verenlerde bakım yükü ve etkileyen etmenler. Süleyman Demirel Üniversitesi Sağlık Bilimleri Dergisi. 2016;7(1):1-9.
  • 34. Orak OS. Caregiver Burden in Family Members of Cancer Patients. J Psychiatr Nurs. Published online 2015. https://doi.org/10.5505/phd.2015.02986
  • 35. Demir Dikmen R, Üşenmez TY. Maneviyat düzeyi-bakım verme yükü ilişkisi: palyatif bakım hastalarına bakım verenlerde kesitsel bir çalışma. Perspectives in Palliative & Home Care. 2022;1(1)(1(1)):8-13. https://doi.org/10.29228/pphcjournal.66353
  • 36. Öztürk Kaynar G, Vural F. Assessment of the Caregiver Burden of Caregivers of Colorectal Cancer Patients. Turkish Journal of Colorectal Disease. 2018;28(4):164-171. https://doi.org/10.4274/tjcd.26121
There are 36 citations in total.

Details

Primary Language English
Subjects Palliative Care
Journal Section Original Research
Authors

Yaşar Demir 0000-0001-9930-8440

Erhan Dağ 0000-0003-3474-1344

Saliha Özpınar 0000-0002-9860-996X

Publication Date June 27, 2025
Submission Date April 22, 2024
Acceptance Date March 4, 2025
Published in Issue Year 2025 Volume: 10 Issue: 2

Cite

APA Demir, Y., Dağ, E., & Özpınar, S. (2025). Caregiving burden and quality of life in individuals caring for palliative care patients. Family Practice and Palliative Care, 10(2), 38-43. https://doi.org/10.22391/fppc.1471914
AMA Demir Y, Dağ E, Özpınar S. Caregiving burden and quality of life in individuals caring for palliative care patients. Fam Pract Palliat Care. June 2025;10(2):38-43. doi:10.22391/fppc.1471914
Chicago Demir, Yaşar, Erhan Dağ, and Saliha Özpınar. “Caregiving Burden and Quality of Life in Individuals Caring for Palliative Care Patients”. Family Practice and Palliative Care 10, no. 2 (June 2025): 38-43. https://doi.org/10.22391/fppc.1471914.
EndNote Demir Y, Dağ E, Özpınar S (June 1, 2025) Caregiving burden and quality of life in individuals caring for palliative care patients. Family Practice and Palliative Care 10 2 38–43.
IEEE Y. Demir, E. Dağ, and S. Özpınar, “Caregiving burden and quality of life in individuals caring for palliative care patients”, Fam Pract Palliat Care, vol. 10, no. 2, pp. 38–43, 2025, doi: 10.22391/fppc.1471914.
ISNAD Demir, Yaşar et al. “Caregiving Burden and Quality of Life in Individuals Caring for Palliative Care Patients”. Family Practice and Palliative Care 10/2 (June2025), 38-43. https://doi.org/10.22391/fppc.1471914.
JAMA Demir Y, Dağ E, Özpınar S. Caregiving burden and quality of life in individuals caring for palliative care patients. Fam Pract Palliat Care. 2025;10:38–43.
MLA Demir, Yaşar et al. “Caregiving Burden and Quality of Life in Individuals Caring for Palliative Care Patients”. Family Practice and Palliative Care, vol. 10, no. 2, 2025, pp. 38-43, doi:10.22391/fppc.1471914.
Vancouver Demir Y, Dağ E, Özpınar S. Caregiving burden and quality of life in individuals caring for palliative care patients. Fam Pract Palliat Care. 2025;10(2):38-43.
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Family Practice and Palliative Care       ISSN 2458-8865       E-ISSN 2459-1505