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Bakım verenlerin sorumluluk yükü: Evde bakım ve palyatif bakımın karşılaştırılması

Year 2023, Volume: 8 Issue: 6, 140 - 146, 28.12.2023

Yasemin Kurtoğlu

https://doi.org/10.22391/fppc.1245397

Abstract

Giriş: Çalışmamızda, evde hastalara bakım verenler ile palyatif bakım ünitesindeki bakım verenler arasında bakım yükü, anksiyete ve depresyon düzeyleri arasındaki ilişkinin değerlendirilmesi amaçlanmıştır.
Yöntemler: Kesitsel bir çalışmadır. Çalışmanın evrenini 1,879 hasta oluşturmaktadır. Evde bakımdan farklı olarak palyatif ünitede bakım verenler, hastanede kaldıkları süre boyunca hemşireler tarafından hasta bakımı konusunda eğitildiler. Çalışmaya dahil edilme kriterlerine uyan 186 hasta bakıcı dahil edildi. Palyatif bakım ünitesindeki hastaların bakım verenleri, evde bakım alanlardan farklı olarak hasta bakımı konusunda hasta hastanedeyken eğitim almıştır. Her iki gruptaki bakım verenlerin bakım yükü, anksiyete ve depresyon düzeyleri Zarit Bakıcı Yükü ve Hastane Anksiyete ve Depresyon ölçekleri kullanılarak ölçüldü.
Bulgular: Katılımcıların yaş ortalaması 51.44±12.11 idi. Palyatif bakımda bakım verenlerin ortalama yük ve anksiyete puanları evde bakım grubuna göre daha yüksekti. Palyatif bakım grubunda hem yük hem de anksiyete skorları anlamlı olarak yüksekti (sırasıyla p <0,001 ve p =0,031).
Sonuç: Palyatif bakım ünitesindeki hastaların ayırt edici özelliklerinden biri, bakım verenlere sürekli tıbbi destek, sosyal destek ve eğitim sağlama fırsatıdır. Ancak çalışmamızda palyatif ünitesinde yapılan müdahaleler iki grup arasındaki bakım yükü farkını telafi etmeye yetmediği görülmüştür.

Keywords

Bakıcılar Bakıcı Yükü Palyatif Bakım Evde Bakım Hizmetleri

Ethical Statement

Ethical approval of the study was obtained from the Dumlupinar University Medical Faculty (IRB number: 2018/7-08). All participants were informed about the aims and scope of the research. Written informed consent was obtained from each participant.

References

  • 1. Committee on Family Caregiving for Older Adults; Board on Health Care Services; Health and Medicine Division; National Academies of Sciences, Engineering, and Medicine; Schulz R, Eden J, editors. Families caring for an aging America. Schulz R, Eden J, editors. Washington (DC): National Academies Press; 2016.
  • 2. Dinc B, Ozmete E. Assessment of the care burden and life satisfaction of the family caregivers of the elderly waiting for admission to care institutions journal of society and social work. 2021;32(4):1257-81. https://doi.org/10.33417/tsh.884626
  • 3. MS Jeon, MR Agar, ES Koh, AK Nowak, Hovey EJ, HM. Barriers to managing sleep disturbance in people with malignant brain tumours and their caregivers: a qualitative analysis of healthcare professionals' perception. Supportive Care Cancer 2021;29:3865-76. https://doi.org/10.1007/s00520-020-05970-4
  • 4. Von Elm E, Altman DG, Egger M, Pocock JS, Gotzsche PC, Vandenbroucke JP. The strengthening the reporting of observational studies in epidemiology (STROBE) statement: Guidelines for reporting observational studies. Int J Surg. 2014;12(12):1495-9. https://doi.org/10.1016/j.ijsu.2014.07.013
  • 5. Zarit SH, Reever KE, Bach-Peterson J. Relatives of the impaired elderly: correlates of feelings of burden. Gerontologist. 1980;20(6):649-55. https://doi.org/10.1093/geront/20.6.649
  • 6. Inci F, Erdem M. Validity and reliability of the burden interview and its adaptation to Turkish. J Anatolia Nurs Health Sci 2008;11(4):85-95.
  • 7. Zigmond AS, Snaith RP. The hospital anxiety and depression scale. Acta Psychiatry Scand. 1983;67(6):361-70. https://doi.org/10.1111/j.1600-0447.1983.tb09716.x
  • 8. Aydemir O. Validity and reliability of Turkish version of hospital anxiety and depression scale. Turk J Psychiatry. 1997;8(4):280-7.
  • 9. Lenth R. Java applets for power and sample size [Computer software] [Internet]. 2009. Available from: https://homepage.divms.uiowa.edu/~rlenth/Power/
  • 10. Ay S, Unubol H, Ezer S, Omay O, Sayar GH. Evaluation of the relationship between caregiver burden, coping styles and levels of anxiety and depression in caregivers of old age patients. Fam Pract Palliat Care. 2017;2(3):38-44. https://doi.org/10.22391/fppc.335720
  • 11. Hernández‐Padilla JM, Ruiz‐Fernández MD, Granero‐Molina J, Ortíz-Amo R, Rodríguez M, Fernández-Sola C. Perceived health, caregiver overload and perceived social support in family caregivers of patients with Alzheimer's: Gender differences Health Soc Care Community. 2021;29:1001-09. https://doi.org/10.1111/hsc.13134
  • 12. Sharma N, Chakrabarti S, Grover S. Gender differences in caregiving among family-caregivers of people with mental illnesses. World J psychiatry. 2016;6(1):7-17. https://doi.org/10.5498/wjp.v6.i1.7
  • 13. Baker KL, Roberston N. Coping with caring for someone with dementia: Reviewing the literature about men. Aging Ment Heal. 2008;12(4):413-22. https://doi.org/10.1080/13607860802224250
  • 14. Vicente de Sousa O, Mendes J, Amaral TF. Association between nutritional and functional status indicators with caregivers' burden in Alzheimer's disease Nutr Diet 2022;79(3):380-9. https://doi.org/10.1111/1747-0080.12679
  • 15. I Gimeno, S Val, MJ Cardoso Moreno Relation among caregivers' burden, abuse and behavioural disorder in people with dementia Int J Environ Res Public Health 2021;18:1263. https://doi.org/10.3390/ijerph18031263
  • 16. Tang SH, Chio OI, Chang LH, Mao HF, Chen LH, Yip PK, et al. Caregiver active participation in psychoeducational intervention improved caregiving skills and competency. Geriatr Gerontol Int. 2018;18(5):750-7. https://doi.org/10.1111/ggi.13246
  • 17. Ivarsson AB, Sidenvall B, Carlsson M. The factor structure of the burden assessment scale and the perceived burden of caregivers for individuals with severe mental disorders. Scand J Caring Sci. 2004;18(4):396-401. https://doi.org/10.1111/j.1471-6712.2004.00298.x
  • 18. Caqueo-Urízar A, Rus-Calafell M, Urzúa A, Escudero J, Gutiérrez-Maldonado J. The role of family therapy in the management of schizophrenia: challenges and solutions. Neuropsychiatr Dis Treat. 2015;11:145-51. https://doi.org/10.2147/NDT.S51331
  • 19. Cianfrocca C, Caponnetto V, Donati D, Lancia L, Tartaglini D, Stasio ED. The effects of a multidisciplinary education course on the burden, health literacy and needs of family caregivers. Appl Nurs Res. 2018;44:100-6. https://doi.org/10.1016/j.apnr.2018.10.004
  • 20. Jafari H, Ebrahimi A, Aghaei A, Khatony A. The relationship between care burden and quality of life in caregivers of hemodialysis patients. BMC Nephrol. 2018;19(1):321. https://doi.org/10.1186/s12882-018-1120-1
  • 21. Götze H, Brähler E, Gansera L, Schnabel A, Gottschalk-Fleischer A, Köhler N. Anxiety, depression and quality of life in family caregivers of palliative cancer patients during home care and after the patient's death. Eur J Cancer Care 2018;27(2):12606. https://doi.org/10.1111/ecc.12606

The burden of care among caregivers: a comparison between home care and palliative care

Year 2023, Volume: 8 Issue: 6, 140 - 146, 28.12.2023

Yasemin Kurtoğlu

https://doi.org/10.22391/fppc.1245397

Abstract

Introduction: We aimed to determine whether there is a difference in care burden, anxiety, and depression between caregivers of patients living at home and those in the palliative care unit.
Methods: The study was cross-sectional in the palliative care and home health units. The study population consisted of 1,879 patients. Different from home care, caregivers in the palliative unit were educated by the nurses on patient care during their stay in the hospital. A total of 186 caregivers were enrolled in the study. Unlike those receiving home care, caregivers of the patients in the palliative care unit received training on patient care while they were in the hospital. The care burden, anxiety, and depression levels of the caregivers in both groups were measured using the Zarit Caregiver Burden and Hospital Anxiety and Depression scales.
Results: The mean age of the participants was 51.44±12.11 years. The caregivers' mean burden and anxiety scores were higher in palliative care compared to the homecare group. Both burden and anxiety scores were significantly higher in the palliative care group (p <0.001 and p =0.031, respectively).
Conclusion: One of the distinguishing features of patients in the palliative care unit is the opportunity to provide ongoing medical support, social support, and education to the caregivers. However, the interventions at the palliative unit were not enough to compensate for the difference in the burden of care between the two groups.

Keywords

Caregivers Caregiver Burden Palliative Care Home Care Services

Ethical Statement

Ethical approval of the study was obtained from the Dumlupinar University Medical Faculty (IRB number: 2018/7-08). All participants were informed about the aims and scope of the research. Written informed consent was obtained from each participant.

References

  • 1. Committee on Family Caregiving for Older Adults; Board on Health Care Services; Health and Medicine Division; National Academies of Sciences, Engineering, and Medicine; Schulz R, Eden J, editors. Families caring for an aging America. Schulz R, Eden J, editors. Washington (DC): National Academies Press; 2016.
  • 2. Dinc B, Ozmete E. Assessment of the care burden and life satisfaction of the family caregivers of the elderly waiting for admission to care institutions journal of society and social work. 2021;32(4):1257-81. https://doi.org/10.33417/tsh.884626
  • 3. MS Jeon, MR Agar, ES Koh, AK Nowak, Hovey EJ, HM. Barriers to managing sleep disturbance in people with malignant brain tumours and their caregivers: a qualitative analysis of healthcare professionals' perception. Supportive Care Cancer 2021;29:3865-76. https://doi.org/10.1007/s00520-020-05970-4
  • 4. Von Elm E, Altman DG, Egger M, Pocock JS, Gotzsche PC, Vandenbroucke JP. The strengthening the reporting of observational studies in epidemiology (STROBE) statement: Guidelines for reporting observational studies. Int J Surg. 2014;12(12):1495-9. https://doi.org/10.1016/j.ijsu.2014.07.013
  • 5. Zarit SH, Reever KE, Bach-Peterson J. Relatives of the impaired elderly: correlates of feelings of burden. Gerontologist. 1980;20(6):649-55. https://doi.org/10.1093/geront/20.6.649
  • 6. Inci F, Erdem M. Validity and reliability of the burden interview and its adaptation to Turkish. J Anatolia Nurs Health Sci 2008;11(4):85-95.
  • 7. Zigmond AS, Snaith RP. The hospital anxiety and depression scale. Acta Psychiatry Scand. 1983;67(6):361-70. https://doi.org/10.1111/j.1600-0447.1983.tb09716.x
  • 8. Aydemir O. Validity and reliability of Turkish version of hospital anxiety and depression scale. Turk J Psychiatry. 1997;8(4):280-7.
  • 9. Lenth R. Java applets for power and sample size [Computer software] [Internet]. 2009. Available from: https://homepage.divms.uiowa.edu/~rlenth/Power/
  • 10. Ay S, Unubol H, Ezer S, Omay O, Sayar GH. Evaluation of the relationship between caregiver burden, coping styles and levels of anxiety and depression in caregivers of old age patients. Fam Pract Palliat Care. 2017;2(3):38-44. https://doi.org/10.22391/fppc.335720
  • 11. Hernández‐Padilla JM, Ruiz‐Fernández MD, Granero‐Molina J, Ortíz-Amo R, Rodríguez M, Fernández-Sola C. Perceived health, caregiver overload and perceived social support in family caregivers of patients with Alzheimer's: Gender differences Health Soc Care Community. 2021;29:1001-09. https://doi.org/10.1111/hsc.13134
  • 12. Sharma N, Chakrabarti S, Grover S. Gender differences in caregiving among family-caregivers of people with mental illnesses. World J psychiatry. 2016;6(1):7-17. https://doi.org/10.5498/wjp.v6.i1.7
  • 13. Baker KL, Roberston N. Coping with caring for someone with dementia: Reviewing the literature about men. Aging Ment Heal. 2008;12(4):413-22. https://doi.org/10.1080/13607860802224250
  • 14. Vicente de Sousa O, Mendes J, Amaral TF. Association between nutritional and functional status indicators with caregivers' burden in Alzheimer's disease Nutr Diet 2022;79(3):380-9. https://doi.org/10.1111/1747-0080.12679
  • 15. I Gimeno, S Val, MJ Cardoso Moreno Relation among caregivers' burden, abuse and behavioural disorder in people with dementia Int J Environ Res Public Health 2021;18:1263. https://doi.org/10.3390/ijerph18031263
  • 16. Tang SH, Chio OI, Chang LH, Mao HF, Chen LH, Yip PK, et al. Caregiver active participation in psychoeducational intervention improved caregiving skills and competency. Geriatr Gerontol Int. 2018;18(5):750-7. https://doi.org/10.1111/ggi.13246
  • 17. Ivarsson AB, Sidenvall B, Carlsson M. The factor structure of the burden assessment scale and the perceived burden of caregivers for individuals with severe mental disorders. Scand J Caring Sci. 2004;18(4):396-401. https://doi.org/10.1111/j.1471-6712.2004.00298.x
  • 18. Caqueo-Urízar A, Rus-Calafell M, Urzúa A, Escudero J, Gutiérrez-Maldonado J. The role of family therapy in the management of schizophrenia: challenges and solutions. Neuropsychiatr Dis Treat. 2015;11:145-51. https://doi.org/10.2147/NDT.S51331
  • 19. Cianfrocca C, Caponnetto V, Donati D, Lancia L, Tartaglini D, Stasio ED. The effects of a multidisciplinary education course on the burden, health literacy and needs of family caregivers. Appl Nurs Res. 2018;44:100-6. https://doi.org/10.1016/j.apnr.2018.10.004
  • 20. Jafari H, Ebrahimi A, Aghaei A, Khatony A. The relationship between care burden and quality of life in caregivers of hemodialysis patients. BMC Nephrol. 2018;19(1):321. https://doi.org/10.1186/s12882-018-1120-1
  • 21. Götze H, Brähler E, Gansera L, Schnabel A, Gottschalk-Fleischer A, Köhler N. Anxiety, depression and quality of life in family caregivers of palliative cancer patients during home care and after the patient's death. Eur J Cancer Care 2018;27(2):12606. https://doi.org/10.1111/ecc.12606
There are 21 citations in total.

Details

Primary Language English
Subjects Clinical Sciences
Journal Section Original Research
Authors

Yasemin Kurtoğlu 0000-0002-8293-8590

Publication Date December 28, 2023
Submission Date January 31, 2023
Acceptance Date December 13, 2023
Published in Issue Year 2023Volume: 8 Issue: 6

Cite

APA Kurtoğlu, Y. (2023). The burden of care among caregivers: a comparison between home care and palliative care. Family Practice and Palliative Care, 8(6), 140-146. https://doi.org/10.22391/fppc.1245397
AMA Kurtoğlu Y. The burden of care among caregivers: a comparison between home care and palliative care. Fam Pract Palliat Care. December 2023;8(6):140-146. doi:10.22391/fppc.1245397
Chicago Kurtoğlu, Yasemin. “The Burden of Care Among Caregivers: A Comparison Between Home Care and Palliative Care”. Family Practice and Palliative Care 8, no. 6 (December 2023): 140-46. https://doi.org/10.22391/fppc.1245397.
EndNote Kurtoğlu Y (December 1, 2023) The burden of care among caregivers: a comparison between home care and palliative care. Family Practice and Palliative Care 8 6 140–146.
IEEE Y. Kurtoğlu, “The burden of care among caregivers: a comparison between home care and palliative care”, Fam Pract Palliat Care, vol. 8, no. 6, pp. 140–146, 2023, doi: 10.22391/fppc.1245397.
ISNAD Kurtoğlu, Yasemin. “The Burden of Care Among Caregivers: A Comparison Between Home Care and Palliative Care”. Family Practice and Palliative Care 8/6 (December 2023), 140-146. https://doi.org/10.22391/fppc.1245397.
JAMA Kurtoğlu Y. The burden of care among caregivers: a comparison between home care and palliative care. Fam Pract Palliat Care. 2023;8:140–146.
MLA Kurtoğlu, Yasemin. “The Burden of Care Among Caregivers: A Comparison Between Home Care and Palliative Care”. Family Practice and Palliative Care, vol. 8, no. 6, 2023, pp. 140-6, doi:10.22391/fppc.1245397.
Vancouver Kurtoğlu Y. The burden of care among caregivers: a comparison between home care and palliative care. Fam Pract Palliat Care. 2023;8(6):140-6.
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Family Practice and Palliative Care       ISSN 2458-8865       E-ISSN 2459-1505