Abstract
Introduction: The purpose of the present study was to examine the descriptive data regarding the children, their families, and living conditions in the records of home healthcare services provided for children between 01.04.2020 and 01.04.2021 at a children’s university hospital.
Methods: The sample of this descriptive study consisted of the files of 170 pediatric patients who received service from Health Sciences University (SBU) Izmir Dr. Behçet Uz Pediatric Diseases and Surgery Training and Research Hospital Home Healthcare Services Unit between 01.04.2020 and 01.04.2021. The data were collected with the Data Record Form that was created by the researchers in line with the contents of the files kept for patients. The analysis of the data in this form was made in the SPSS package program 25.0 trial version. The data were described in terms of numbers, percentages, and averages, and the Chi-Square Significance Test was used in the comparisons made between the demographic data. The statistical significance level was considered as p<0.05. To conduct the study, permission was obtained from the Ethics Committee of S.B.U. Izmir Dr. Behçet Uz Pediatric Diseases and Surgery Training and Research Hospital.
Results: The children who were included in the study were between the ages of 0 and 17 and the average age was 9.11±4.61. It was found that a total of 54.7% of the children were male, 97.6% were cared for by their mothers, 61.8% of the children whose files were examined had social security at the Social Security Institution (SSI), 51.8% were receiving service from the unit and were diagnosed with a neurological disease, and 58.8% were fully dependent in their daily living activities, 27.1% of them used mechanical ventilation, 37.6% used aspirator devices, 37.1% needed Oxygen (O2) support, 48.7% were fed orally, 27.7% were fed through the nasogastric route, and 23.6% were fed through Percutaneous endoscopic gastrostomy (PEG) and 4.2% of the participating children developed pressure sores. According to the records regarding the physical conditions of the places where children lived, 72.4% lived in apartments, 38.8% had a house that was heated by a heating system natural gas, 98.8% had good lighting in their homes, and 57.1% had alaturka toilet in their homes. Also, 64.8% of the children stayed in the living room of the house and 92.4% had good home hygiene. A statistically significant difference was detected between the income status of the children’s families and their social security (X2= 47.542 p=0.001, df=1).
Conclusion: The factors such as the majority of patients registered to home healthcare services being cared for by their mothers, their high rates of dependency in daily living activities, some developing pressure sores, the need to be attached to a medical device, and varying home conditions in suitability for care show that patients have varying medical, psychological and social needs. For this reason, it would be beneficial to focus on pediatric studies in home healthcare services, organize.
Keywords
Ethical Statement
To conduct the study, an application was made for the preliminary permission of (SBU) Izmir Dr. Behçet Uz Pediatric Diseases and Surgery Training and Research Hospital Clinical Research Ethics Committee on 16.06.2021, and Clinical Study Ethics Committee Approval was received from the Clinical Study Ethics Committee on 08.07.2021 with the protocol number 591 and decision number 2021/12-09. Informed consent was obtained from the participants for the study.
References
- 1. Tarricone R, Tsouros AD. Home care in Europe: the solid facts. World Health Organization. Regional Office for Europe. 2008;1-36. Available at: https://apps.who.int/iris/handle/10665/328766 (Access Date: December 22, 2023)
- 2. Ayar G, Sanliay S, Yazıcı Uysal M, Coskun R, Yakut HI, Demirel F. [Evaluation of home care services in chronically ill children] (in Turkish). Turk J Pediatr Dis. 2015; 9(1):12-7.
- 3. Murphy NA, Alvey J, Valentine KJ, Mann K, Wilkes J, Clark EB. Children with medical complexity: the 10-year experience of a single center. Hosp Pediatr. 2020; 10(8):702-8. https://doi.org/10.1542/hpeds.2020-0085
- 4. Sonmez Duzkaya D, Bozkurt G, Yakut T. [Evaluation of home care services given to medical technology-dependent children that were discharged from intensive care unit] (in Turkish). J Health Sci Prof. 2017; 4 (3): 204-11. https://doi.org10.17681/hsp.317005
- 5. Çadirci D, Kepenek E, Orenler M, Yavuz Daglioglu EB, Guzelçicek A. [Evaluation of home care services provided for childhood patients] (in Turkish). Konuralp Med J. 2019;11(3): 377-83. https://doi.org/10.18521/ktd.538867
- 6. Kose A, Noyan Erbas A, Seyhan Biyik K, Acar Sengul E, Incebay O, Celik Z, et al. [Cuha model approach to an individual with cerebral palsy: a case report-cuha model] (in Turkish). Hacettepe Uni Fac Health Sci J. 2021; 8(1), 15-26. https://doi.org/10.21020/husbfd.784012
- 7. Çirlak A, Toruner EK. [The importance of training programs for parents of children with special health care needs] (in Turkish). Gazi J Health Sci. 2021; 6(3):127-34. https://doi.org/10.52881/gsbdergi.897201
- 8. Kahraman Berberoglu B, Çalisir H. [Nursing care of a child with cerebral palsy according to the orem self-care deficiency theory: case report] (in Turkish). J Adnan Menderes Uni Health Sci Fac. 2020;4(2):154-67. https://doi.org10.46237/amusbfd.613380
- 9. Looman WS, Antolick M, Cady RG, Lunos SA, Garwick AE. Finkelstein SM. Effects of a telehealth care coordination intervention on perceptions of health care by caregivers of children with medical complexity: a randomized controlled trial. J Pediatr Health Care. 2015; 29(4): 352-63. https://doi.org/10.1016/j.pedhc.2015.01.007.
- 10. Choi YH, Kim MS, Kim CH, Song IG, Park JD, In Suh D, et al. looking into the life of technology-dependent children and their caregivers in korea: lifting the burden of too many responsibilities. BMC Pediatrics. 2020; 20(1): 1-10. https://doi.org/10.1186/s12887-020-02388-z
- 11. Çalisir O, Çaliskan Z. [The importance of rational drug use in children: recommendations to parents] (in Turkish). Nevsehir J Sci Tech. 2020; 9 (1), 32-38. https://doi.org10.17100/nevbiltek.689123
- 12. Bektas Akpinar N, Askin Ceran M. [Chronic diseases and rehabilitation nursing] (in Turkish). J Adnan Menderes Uni Health Sci Fac. 2019; 3(2): 140-52.
- 13. Didisen NA, Ozdemir HNC, Keskin E. [Technology-dependent children and home care] (in Turkish). J Pediatr Emerg Intensive Care Med. 2017; 4: 123-29. https://doi.org/10.4274/cayd.65265
- 14. Hounsell KG, Moore C, Zahavi A, Arje D, Weiser N, Esser K, et al. The Experience of housing needs among families caring for children with medical complexity. Pediatrics 2021; 148(1): e2020018937. https://doi.org/10.1542/peds.2020-018937
- 15. Karaman D, Kara D, Yalcin Atar N. Care Needs and disease states of individuals, who home health care services are provided evaluating: example of Zonguldak (in Turkish). Gümüşhane Uni J Health Sci. 2015; 4(3): 347-59.
- 16. Karatasoglu S, Islamoglu E. A research on relationship between income level and social exclusion (in Turkish). J Labour Relations. 2016; 7(1):12-41.
Abstract
Giriş: Bu araştırmanın amacı, bir çocuk üniversite hastanesinde 01.04.2020 - 01.04.2021 tarihleri arasında çocuklara yönelik sunulan evde sağlık hizmetleri kayıtlarında yer alan çocuk, aile ve yaşam koşullarına ilişkin tanımlayıcı verilerin incelenmesidir.
Yöntem: Tanımlayıcı tasarımdaki çalışmanın örneklemi, Sağlık Bilimleri Üniversitesi (SBÜ) İzmir Dr. Behçet Uz Çocuk Hastalıkları ve Cerrahisi Eğitim ve Araştırma Hastanesi Evde Sağlık Hizmetleri Birimi’nden 01.04.2020 - 01.04.2021 tarihleri arasında hizmet alan 170 çocuk hastanın dosyasından oluşturmaktadır. Veriler, hastalar için tutulan dosya içeriğine doğrultusunda araştırmacılar tarafından oluşturulan veri kayıt formu aracılığı ile toplanmıştır. Bu formdaki verilerin analizi SPSS paket programı 25.0 deneme sürümünde yapılmıştır. Veriler sayı, yüzde ve ortalamalar üzerinden tanımlanmış, demografik veriler arasındaki karşılaştırmalarda ki-kare önemlilik testi kullanılmıştır. İstatistiksel anlamlılık düzeyi p<0.05 olarak ele alınmıştır. Araştırmanın uygulanabilmesi için S.B.Ü İzmir Dr. Behçet Uz Çocuk Hastalıkları ve Cerrahisi Eğitim ve Araştırma Hastanesi Etik kurulundan izin alınmıştır.
Bulgular: Araştırma kapsamına alınan çocuklar 0-17 yaş arasında olup, yaş ortalaması 9,11±4,61’dir. Çocukların %54,7’sinin cinsiyeti erkektir ve %97,6’sının bakımı anneleri tarafından yapılmaktadır. Dosyası incelenen çocukların %61,8’inin Sosyal Güvenlik Kurumu (SGK) sosyal güvencesi bulunmaktadır. Birimden hizmet alan çocukların %51,8’inde nörolojik hastalık tanısı bulunmakta olup, %58,8’u günlük yaşam aktivitelerinde tam bağımlıdır. Çocukların, %27,1’inin mekanik ventilatör, %37,6’sının aspiratör cihazı kullandığı, %37,1’inde Oxygen (O2) desteğine ihtiyacı olduğu görülmektedir. Çocukların %48,7’si oral, %27,7’si nazogastrik ve %23,6’sı ise Perkütan Endoskopik Gastrostomi (PEG) ile beslenmektedir. Katılan çocukların %4,2’sinde bası yarasının gelişmiş olduğu görülmektedir. Çocukların yaşadıkları yerlerin fiziksel koşullarına ilişkin kayıtlara göre, %72,4’ünün apartman dairesinde oturduğu, %38,8’inin ısıtma sisteminin doğalgaz ile ısındığı, %98,8’inin evlerinde iyi aydınlanma, %57,1’sinin evlerinde alaturka tuvalet bulunmaktadır. Çocukların, %64,8’inin evin salonunda kaldığı, %92,4’ünün ev hijyeninin iyi olduğu belirlenniştir. Çocukların ailelerinin gelir durumları ile sosyal güvencesi olması arasında istatistiksel olarak anlamlı bir farklılık saptanmıştır (X2= 47,542 p=0,001, df=1).
Sonuç: Evde sağlık hizmetlerine kayıtlı hastaların çoğunluğuna annelerinin bakması, günlük yaşam aktivitelerinde bağımlılık oranlarının yüksek olması, bazılarında bası yarasının gelişmiş olması, tıbbi cihaza bağlılık ihtiyacının olması, ev koşullarının bakıma uygunluğunun değişiklik göstermesi gibi faktörler hastaların çeşitlilik gösteren tıbbi, psikolojik ve sosyal ihtiyaçlarının olduğuna işaret etmektedir. Bundan dolayı evde sağlık hizmetlerinde pediatrik çalışmalara ağırlık verilmesi, bu alanda hizmet sunanlara yönelik eğitim programı açılması, hizmet sunumunda kayıtlardaki bu veriler dikkate alınması yararlı olacaktır.
Keywords
References
- 1. Tarricone R, Tsouros AD. Home care in Europe: the solid facts. World Health Organization. Regional Office for Europe. 2008;1-36. Available at: https://apps.who.int/iris/handle/10665/328766 (Access Date: December 22, 2023)
- 2. Ayar G, Sanliay S, Yazıcı Uysal M, Coskun R, Yakut HI, Demirel F. [Evaluation of home care services in chronically ill children] (in Turkish). Turk J Pediatr Dis. 2015; 9(1):12-7.
- 3. Murphy NA, Alvey J, Valentine KJ, Mann K, Wilkes J, Clark EB. Children with medical complexity: the 10-year experience of a single center. Hosp Pediatr. 2020; 10(8):702-8. https://doi.org/10.1542/hpeds.2020-0085
- 4. Sonmez Duzkaya D, Bozkurt G, Yakut T. [Evaluation of home care services given to medical technology-dependent children that were discharged from intensive care unit] (in Turkish). J Health Sci Prof. 2017; 4 (3): 204-11. https://doi.org10.17681/hsp.317005
- 5. Çadirci D, Kepenek E, Orenler M, Yavuz Daglioglu EB, Guzelçicek A. [Evaluation of home care services provided for childhood patients] (in Turkish). Konuralp Med J. 2019;11(3): 377-83. https://doi.org/10.18521/ktd.538867
- 6. Kose A, Noyan Erbas A, Seyhan Biyik K, Acar Sengul E, Incebay O, Celik Z, et al. [Cuha model approach to an individual with cerebral palsy: a case report-cuha model] (in Turkish). Hacettepe Uni Fac Health Sci J. 2021; 8(1), 15-26. https://doi.org/10.21020/husbfd.784012
- 7. Çirlak A, Toruner EK. [The importance of training programs for parents of children with special health care needs] (in Turkish). Gazi J Health Sci. 2021; 6(3):127-34. https://doi.org/10.52881/gsbdergi.897201
- 8. Kahraman Berberoglu B, Çalisir H. [Nursing care of a child with cerebral palsy according to the orem self-care deficiency theory: case report] (in Turkish). J Adnan Menderes Uni Health Sci Fac. 2020;4(2):154-67. https://doi.org10.46237/amusbfd.613380
- 9. Looman WS, Antolick M, Cady RG, Lunos SA, Garwick AE. Finkelstein SM. Effects of a telehealth care coordination intervention on perceptions of health care by caregivers of children with medical complexity: a randomized controlled trial. J Pediatr Health Care. 2015; 29(4): 352-63. https://doi.org/10.1016/j.pedhc.2015.01.007.
- 10. Choi YH, Kim MS, Kim CH, Song IG, Park JD, In Suh D, et al. looking into the life of technology-dependent children and their caregivers in korea: lifting the burden of too many responsibilities. BMC Pediatrics. 2020; 20(1): 1-10. https://doi.org/10.1186/s12887-020-02388-z
- 11. Çalisir O, Çaliskan Z. [The importance of rational drug use in children: recommendations to parents] (in Turkish). Nevsehir J Sci Tech. 2020; 9 (1), 32-38. https://doi.org10.17100/nevbiltek.689123
- 12. Bektas Akpinar N, Askin Ceran M. [Chronic diseases and rehabilitation nursing] (in Turkish). J Adnan Menderes Uni Health Sci Fac. 2019; 3(2): 140-52.
- 13. Didisen NA, Ozdemir HNC, Keskin E. [Technology-dependent children and home care] (in Turkish). J Pediatr Emerg Intensive Care Med. 2017; 4: 123-29. https://doi.org/10.4274/cayd.65265
- 14. Hounsell KG, Moore C, Zahavi A, Arje D, Weiser N, Esser K, et al. The Experience of housing needs among families caring for children with medical complexity. Pediatrics 2021; 148(1): e2020018937. https://doi.org/10.1542/peds.2020-018937
- 15. Karaman D, Kara D, Yalcin Atar N. Care Needs and disease states of individuals, who home health care services are provided evaluating: example of Zonguldak (in Turkish). Gümüşhane Uni J Health Sci. 2015; 4(3): 347-59.
- 16. Karatasoglu S, Islamoglu E. A research on relationship between income level and social exclusion (in Turkish). J Labour Relations. 2016; 7(1):12-41.
Details
| Primary Language | English |
|---|---|
| Subjects | Paediatrics (Other), Preventative Health Care |
| Journal Section | Original Research |
| Authors | |
| Publication Date | December 28, 2023 |
| Submission Date | July 10, 2023 |
| Acceptance Date | December 14, 2023 |
| Published in Issue | Year 2023Volume: 8 Issue: 6 |
